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Jarred Younger has a very similar project to this funded by ME Research UK using a different zirconium-89 radioisoptope with 15 women participants with ME/CFS and 10 controls. http://www.meresearch.org.uk/our-research/ongoing-studies/immune-cell-infiltration/

@Tom Kindlon I found McGregors paper that has urine information during PEM Paper : Post-Exertional Malaise Is Associated with Hypermetabolism, Hypoacetylation and Purine Metabolism Deregulation in ME/CFS Cases https://www.mdpi.com/2075-4418/9/3/70/htm Thread ...

Columbia did do cytokine analysis of cerebrospinal fluid and reported results in 2015. I wonder if the metabolimics was performed on the same samples but not published so far? Simmaron funded the cytokine work. Cytokine network analysis of cerebrospinal fluid in myalgic...

When everyone was exiting the livestream a message came up to say who was leaving. I was happy to see a "kmorten" and that he is keeping tabs on ME presentations. I'm so hoping he stays engaged in ME research as I think he is very creative in looking at the disease.

If I remember right Chris Armstrong/Neil McGregor measured urine during PEM. According to the University of Melbourne website this is his email. n.mcgregor@unimelb.edu.au Neil talks about urine in PEM in this presentation around ~6mins. "Dramatic increase in amount of metabolites in urine". I...

Here is a tweet from @paolo with a link to his write-up

Please remember that this was a talk to psychologists and psychiatrists that were present with some science folks at two other locations. It was mostly stuff we had heard before. What I hadn't heard before was the introduction to Ron Davis where the presenter described some of his achievements...

This is what the UK Cure ME team had to say about CRP in the discussion section of their paper Source : https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6627354/

@debored13 Some others have burnt their letter on camera. None in the dark yet - that would be unique. Good luck in your hunt for housing.

It will be interesting to see more details when available of the non-profit Amy Proal and Kris Fobes are working on starting, and mentioned very briefly in Amy's Solve ME/CFS talk this week

It's a very good question. I guess most health studies are advertised in specialist clinics local to the study. That's a problem in ME/CFS with the lack of clinics. Having a research coordinator can help with recruiting patients but this takes more funds. As we know there is usually not much...

You are right. That Sweden slide seems to be old data from Montoya samples according to Mark Davis's NIH talk. In this talk he said they were just getting started with the new Ron Davis cohort, had just received the HLA data needed for the work, and may also need to start looking at TCR's on CD4...

@FMMM1 This is the latest info on the study I've seen suggesting an ongoing T-cell response. It was from the recent ME conference in Sweden in Oct 2019 and presented by Jonas Berquist on behalf of the OMF team. How is your Swedish? https://youtu.be/XZcxLocioYU?t=9567

There is some more info here and a 2012 paper "High-throughput, high-fidelity HLA genotyping with deep sequencing" by both Davis's https://www.omf.ngo/2018/07/25/julie-wilhelmy/ And more info here. It could be technology already developed in the 2012 paper but it's not clear...

Another paper on Exosomes that I thought appropriate for this thread. Adipose tissue-derived extracellular vesicles mediate development of metabolic diseases (5Nov2019) https://link.springer.com/article/10.1007/s00125-019-05014-5 I thought the section on processing of blood to extract...

I wonder if Trish Greenhalgh at Oxford would be willing to meet with Jamie Strong, and hear about his patient led research into ME with Karl Morten at Oxford? Could she be turned around into a supporter? https://www.wrh.ox.ac.uk/team/jamie-strong

Do you have a reference for that @FMMM1? From what I remember Montoya in his video talks mentioned he sequenced HLA and thought he had exciting findings and was close to publishing. When Ron Davis looked at them Montoya mentioned they would do a new study, and the paper was never published. His...

To be fair she does mention these situations Oh gosh, what am I doing reading this and commenting. Am I losing my mind? Time to log off......

Citation 28 is a newspaper article. Not very scientific!