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Dr Ruhoy mentioned in the article is also with Atria Health and Research Institute, which according to the NY Post (Link) have a $100,000 initial fee and $60,000 annual fee. Link to Atria Health page with Dr Ruhoy. Dr Ruhoy is one of the Neurologists sending people for CCI surgery and has the...

Priced out: Some Long COVID and ME specialists charge high prices for concierge care Key points you should know: * Prominent specialists treating complex infection-associated chronic conditions have stopped taking insurance, raised their rates, and/or moved to a concierge model, requiring...

In the CureME diagnostics paper the changes were minor but significant : CRP : HC 1, Cases 2, Severe cases 1, Mild cases 2 ESR : HC 5, Cases 7, Severe cases 5, Mild cases 7

Update on LIFT trial from David Systrom. He also talks about data from a retrospective analysis of patients using these drugs in the clinic. (Shoutout to post by @voner )

Thanks for recommending the muscle biopsy videos. I like that they were short presentations and really concise and wow, lots of interesting findings, some with good separation to controls, something we rarely see. In the Wust presentation I loved seeing Systrom chair the session. I hope the...

Fc-γR-dependent antibody effector functions are required for vaccine-mediated protection against antigen-shifted variants of SARS-CoV-2, Macklin 2023 Samantha R. Mackin, Pritesh Desai, Bradley M. Whitener, Courtney E. Karl, Meizi Liu, Ralph S. Baric, Darin K. Edwards, Taras M. Chicz, Ryan P...

Update: A Muscle Biopsy Study to Understand the Molecular Mechanisms of PEM Dr. Systrom, the Director of The Ronald G. Tompkins Harvard ME/CFS Collaboration, and his team are studying the relationship between poor oxygen extraction, vascular abnormalities, and mitochondrial dysfunction and how...

Some clinics such as Montoya at Stanford used to use antibody tests as justification for prescribing antivirals. Their first clinical trial was then used as justification. But their own follow up and much larger blinded study showed absolutely no benefit in ME/CFS as a group. When Montoya left...

I think much the same is true for HHV6 in blood but then Jackie Cliff found increased levels of HHV6B in saliva and is now looking deeper into that with an NIH grant. I wish I could remember the update she presented....... I guess we are always learning.

Did you have an "EBV Early Antigen Ab, IgG" test. I think that can be used to show active infection but I was told that the physician would only be concerned if high levels were much higher than the cutoff, and that PCR is the gold standard for proof.

Sorry if you have already covered my question in this thread. Can you explain why the "junk antibodies" in this hypothesis paper would not be detectable as a difference in the Andrew Grimson March 2025 antibody paper (thread link) that had a null result. In the thread of that study linked...

The Nanoneedle results were with fresh samples. I don't think the Stanford researchers could get repeatable results with frozen samples. I believe the Nanoneedle project used some "golden patient volunteer(s)" who gave very clear distinction that they used for the initial set up to get...

@jnmaciuch There are some more studies listed here https://ammes.org/tag/muscle-biopsies/ This Stanford study of energy production in PBMC's discusses the finding that ME/CFS cells produced more energy from non-mitochondrial means than control cells. Also looked at mitochondria in detail...

Wow thank you for sharing. That's pretty convincing. How is your view of the Lumina device after some more time using it if you wouldn't mind sharing?

Thank you both @chillier and @DMissa for the explanation. I've learned that using the Seahorse is not plug and play and needs proper knowledge and experimental design. I didn't realise different Seahorse models had different well sizes that needed to be taken into account. I love when I can...

I thought it was interesting that the big picture they are thinking of is to group patients by genes of interest and then target those patients with medications that could help. The panel of genes generated from DecodeME will be more robust and they can use them to create a low cost gene test...

I was watching the recent Action for ME webinar where Audrey presented this work and the following slide was shown at (link to 11:33) and it shows individual variations between people's samples that were part of the replicates for each person. @DMissa is it expected to have such variation...

This webinar was really well done. Ran smooth, clear concise presentations with actual data on a variety of projects with good information provided. And what a great way for Action to ME to share how the money that funded a Phd was put to use. I wish all charities communicated projects they are...

The article states they are also doing single cell analysis as well to see what genes are present. Also, the text lists the researchers working on the project - perhaps they might answer an email?

This study is doing that. Perhaps Maureen Hanson? https://www.omf.ngo/investigation-into-post-exertional-malaise-between-historical-and-recent-me-cfs/