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The killer is “possible actions”. Not planned, not preferred, not prioritised, not phased, not procurable. Just . . . possible. You might as well go full Liam Byrne and simply write a note saying “there is no money”.

I think that anyone who has spent any time in Whitehall would recognise that flimsy paper as most likely to be the last gasp of an initiative which no longer has any senior supporters or champions. What an enormous shame.

Is this the one time when it is legitimate to say that online communities sometimes include people who miscomprehend information and jump emotionally to the wrong conclusions, without being cancelled and bargain-binned alongside J K Rowling? @Andy - I thought the “thanks but no thanks” email...

No 2021 or 2022 onset option, oddly. Edit: no 2021 or 2022 diagnosis option either, although it offers 1930 for any centenarians who dimly recall a frock-coated consultant suggesting poliomyelitis or neuromyasthenia.

I’ve been documenting adrenal adventures (phaeochromocytoma and cortisol insufficiency) in this thread, which I will update with anything of endocrinological interest. Occam’s razor suggests that the endocrine issues were, at the very least, implicated in triggering ME/CFS mode. I doubt that the...

+1

Done. I suspect that ticking the box for diagnosed adrenal insufficiency will rule me out, though. As it should. No-one wants confounding comorbidities, even iatrogenic ones which postdate the ME/CFS diagnosis.

I was only on the 40mg dose for a few days before halving it, and an endocrinologist okayed the decision. I don’t think my system had had time to acclimatise to anything! Yes, I split 10/5/5. Drug interactions are a possible concern and yes, the hydrocortisone might exacerbate the adrenal...

That’s really interesting @Kitty - would you mind updating if you get diagnosed or find anything else out about how steroids are affecting you? The endocrinologists seem very keen on measuring potassium and sodium - I was hypokalaemic just after the op - so hopefully they’ll be sighted on this...

Quick update. Firstly, apologies, but it turns out that there is little value in this ongoing n=1 anecdote for anyone else, because adrenal insufficiency following unilateral adrenalectomy for phaeochromocytoma seems to be incredibly rare. After lots of trawling I found only one relevant case...

Yes, we’ve all been there.

I have discussed or mentioned my ME/CFS symptoms at the Royal Free with consultant endocrinologists, urologists, cardiologists, urological surgeons and a loathsome neurologist. All the consultants seem to know each other. Not a single one has ever said “hey, you should get a referral to our...

The bulk of the messages depicted in the book are not tweets. They are private channel chats in a poorly-described interactive game based on the cartoon. I don’t think JKR has any interest in gaming, or any idea what games are like, but this one involves avatars wandering around completing tasks...

Does he mean “unconstructive” when he says “deconstructive” or is some latter-day Derrida winding him up?

A couple of other quick points on this. I mentioned that Kea has CFS and Inigo has ME. At no point are the two described as having the same illness, so JKR may well be under the impression that they are not synonymous, perhaps seeing ME as the more authoritative diagnosis. Also, the reason why...

Kea posts at one point that she is not sure if she is entirely cis. So gender dysphoria is jumbled in with all the other signifiers that she is something of a drama queen. The in-universe cartoon characters includes a genderless worm. Trans Twitter is angry about some aspects of his portrayal...

It’s a great thought. Is the aim to head an adaptation off at the pass, or to force an improved portrayal of PwME and ME communities? It might affect the optimum timing of such a campaign.

Okay, I’ve downloaded and read this book now. It’s a whodunnit, and a fair discussion of Rowling’s attitudes to ME/CFS would be tricky without spoilers. So if you are keen on overlong detective novels, please read it yourself and ignore this post. The co-creator of a cartoon series is...

25% of phaeochromocytomas are familial, did your sister have genetic testing done?

The causes for optimism are looking a tiny bit stronger. I had the adrenalectomy last Monday and got myself discharged on Wednesday. I just had a call from the endocrine team to say that the cortisol level in bloods taken after the operation was 36 nmol/l, and I needed to start on daily 40mg...