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Still available at https://goliveaustralia.com.au/emerge2019/

Someday someone is going to make a big book filled with all those tweets PwME have been collecting, I can’t wait.

There was a glitch in the live streaming from day 2 and his talk (and everything from before lunch) is gone. Hopefully it will be included when they post everything on YT. He repeated most of his talk on day 3, but not sure if he repeated that bit. You can find day 3 here...

DAY 31: Update Current dosage: 3x 45mg (135 mg daily) The side effects continue to be few and small, mostly making me a little jittery when taken on an empty stomach but little else. However, the effects of the drug appear to be nonexistent, and so I have decided to discontinue Mestinon from...

I completed the questionnaire this morning :thumbup: I’m very excited about this study, we desperately need to map out the challenges faced by PwME in accessing health and social services, and everything I’ve seen so far makes me optimistic that the people behind this study are doing a very...

It has been used frequently in Norway, too.

It works wonders for me, in the right dose it can completely kill neurological pain and help with sleep. However, I have only tried it in the form of a CBD rich strain baked into brownies. CBD oil is illegal in Norway, but I will try to get hold of some from Sweden the next time I'm over the...

Glutathione does nothing for me in any form, but NAC especially (a precursor) has been helpful in reducing neuroinflammation and brainfog. Will be trying precursors ALA and milk thistle as well eventually, as I have seen multiple people on here say they find them helpful.

@Alvin many presentations taken out bc of unpublished results I think.

Here is the archived version: http://archive.today/lwDNQ

@Cheshire maybe change the link to the archived article like @Gecko suggested? That way they won't get any clicks from us:) Here it is: http://archive.today/lwDNQ

Yes. More precisely the somatic.

Thanks, @JaimeS :thumbup: I couldn’t remember it all and didn’t want to get it wrong, so I hoped someone would jump in with the rest:) This forum never disappoints!

I believe the Danish MEA partnered with one of the political parties/representatives to prepare this and bring it forward. Similar to the partnership with CM in the UK, maybe. I think a lot of work has been done over a long period of time to get there, but I don’t know any of the specifics.

Congratulations to all our Danish friends who had a very successful ME debate today!

Thank you @Webdog for proving that even if we're very ill, if we just stick with it (and stick with it, and stick with it) we can effect real change. This is enormously motivating for all of us who are chipping away at our own mountains of misinformation. 3x3 hooray!

Not published yet.

We should probably see this as the first, preliminary test of the questionnaire, which gives us some interesting data and ideas but was never meant to be used as facts. As far as I could tell the authors make no claims that the data means anything other than that the questionnaire seems to be...

@mango you probably did the right thing, and in any case no harm done if they turn out to be the same after all:) Be careful and take care of yourself, health comes first.

DAY 18: A short update. Dosage increased to 3x 15 mg per day. Increased again to 3x 30 mg from today. Had a little gastrointestinal discomfort when I took it on an empty stomach, but this was easily resolved by taking it with some food. After a few days I could go back to taking it on an empty...