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I would add @Esther12 that most of are familiar with your style and know what to expect, and I for one would much rather have weak points pointed out by friendly pink bears than by bitter psychiatrists!

I don't know enough about this to do it without doing research that I'm not at all able to do right now, I'm sorry. If anyone is interested in taking up the challenge here is the post from Wiggle and below I've quoted the full (but not extensive) list: and This is why I've changed to...

key point

Give it a little time, @Arnie Pye people are tired after the last few days, activity on the forum has gone done significantly after the onslaught on Monday and Tuesday. I for one don't have the capacity to read or react right now :asleep:

I am rolling my eyes so hard it hurts

I concluded last year that it's not caused by pollen, but is likely causes by the rapid shift in daylight hours around the time of the spring equinox :) Nothing to be sorry about, I'm simply sleeping a lot for about a month and then it passes (and I usually feel a lot better after, with all that...

Just wanted to comment that my yearly spring equinox 'reaction' is back again - I can barely keep my eyes open these days. Counting down they days until it passes, although it's actually a good time for it since I'm more severe and crashing more atm than usual and need to be resting more...

To be clear ME Action did everything right in my opinion, and I know you and several others worked themselves to the bone to help out. That felt like real support! And that again broke MY heart, because after all most of you are patients too and I was seriously worried for your health this week.

Your article was a VERY welcome addition, @JaimeS :) I think from the UK charities perspective, what was needed was not necessarily for them to respond with more media coverage or articles (as we know those are not always helpful), but they could have done a lot to let patients know that they...

Agreed. It feels like it's been very much up to individual patients to take up the fight, and while many have done this extremely well I think we're all exhausted and deeply affected by the intense activity level and negative focus this week. I see so many pwME coming together to do their...

when have anything they do ever been about sense

I think that comment is a misrepresentation of the discussion here. People have to be able to discuss the merit of different approaches and advocates without being accused of not listening to other perspectives. Also, would be much more helpful if that comment was made here, so it could...

And, because the severity is fluctuating for many of us, what was good pacing yesterday is not necessarily adequate pacing tomorrow.

I'm with @Barry on this one. I think it could bridge the gap for some people, or give them something that will help frame furter attacks from Sharpe et al in a more nuanced light. Hopefully someone will pick up the deeper story soon, and this could help get us there. I also think she deserves...

Yes, me too. She apparently put together an article/reply and has been pitching it to the bigger papers/outlets, but will publish on medium tomorrow if no one picks it up. Judging by her twitter threads I feel pretty confident that an article from her would be a good thing.

The asthma example feels particularly relevant.

As RD said, just because it makes the blood of pwME act normal, doesn't necessarily mean it has any practical application, but it's a good start. Lots of meds have side effects that make them have a therapeutical value beyond their intended use. My impression was that they don't know why it...

He’s on the Norwegian “BPS team” along with Vogt. Other than that, completely uninteresting.

@Sunshine3 oh, that's a shame. Have you tried the little video icon in the upper right corner? If you have and it's still not working at least happy news that it will probably be on YT fairly soon:)

As far as I know this is the first mention of where they might put us, yes. Other people are usually far better informed than me, though!