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It’s not a cure:) because it masks pain it can also blind you to signals that you have overdone it. So be careful not to do more just because you feel better. You can still crash, and if the PEM is bad enough LDN will not be enough to escape it.

We were given 20 mg anti histamine (H1) and 1 g paracetamol 1 hr before (to reduce reactions and discomfort), and then of course cortisol and lastly MabThera.

Surely there are physical pharmacy chains that also have an online presence? My local pharmacy can also fulfill prescriptions by post to anywhere in the country. Of course, Canada is slightly bigger...

Very common during the first couple of weeks, but passes for nearly everyone after a while. Some people avoid taking it too late at nights because of this. Others get sleepy and avoid taking it in the morning. I have had none of these issues after the first couple of weeks and now take 3 mg in...

I’m not unusually tall (5’7”) and definitely not especially slender, but I was a fainter my entire childhood. I outgrew it after puberty, although I continued to struggle with low blood pressure at times. Fainting was often accompanied by a nosebleed, and I have woken up in a puddle of blood...

Yes, but we're a small and close knit community where a big proportion follow the same fb groups and prominent people. It's easy to get the word out, and our community discussion is largely one big central one rather than several smaller local ones. DT showing up at our conferences has also made...

Breen, was that the guy who was chewing gum like his life depended on it the whole time, even when speaking?

I'm sure you're right! He said A LOT more but he's talking very fast and to be honest I'm starting to fog over too much to follow. I picked a couple of lines from one of his slides as an example. Just wanted to comment that they are addressing it in some way. Hopefully this will all be posted...

Elzakker: “Neuroinflammation” is imprecise, “microglial activation” is a proxy ETA: Apparently both Younger and Van Elzakker are aware of the issues with the vague language around neuroinflammation, a good sign that they are addressing it.

Could you order from an online pharmacy? And, have you checked prices for both 50mg and 3mg tablets? Its $50 in Norway, which is a bit on the expensive side but well worth it. I haven't actually considered ordering it online myself, but that could probably save me some money! Hello Google my old...

Younger now. Taking the time to define what he means by neuroinflammation, so someone must have gotten a word in:) Uses it in the crudest sense, whenever he means any form of micro glial activation.

Hopping should be good cardio?

Yes, I read somewhere it will be posted in a week or so.

Yes

It's back on, but they've gone to break:) Keeps falling out every now and then. Sometimes every 5 minutes, sometimes every 2 hours.

I'll try to get back on for the next presentation – Klimas – in 30 minutes. This one is obviously a lost cause. Too bad, I was so happy about the great talk from a very young researcher!

Montoya now :)

Yes, from what I can tell it's works in about half. My MiL and step mom both have FM and find it helps immensely. Would be interesting to see studies on why it works in some and not others.

The next presentation is Jonas Bergquist, should start very soon.

It works well for me. But as a pain med, no effect on fatigue. My QoL is better on it.