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Beautifully written and put together. This brought tears to my eyes. Well done @Robert 1973 :emoji_clap: I always get so sad for all the people I see in the photos, and then only after a while do I remember that this is my life too, I’m lying here in bed too. Still feels so unreal that this is...

Just submitted review and rating:) You have a good voice for radio @Gary Burgess :thumbup:

Most banks have their own conversion rates though, that will usually include a fee of 2.5-2.75% above market rates.

A tip from my asthma days is that it is usually more effective to focus on breathing out. When we feel like we can’t draw a proper breath we instinctively try to pull in as much air as possible, however the problem is often that not enough air gets expelled. Then there’s not enough room for...

It will also raise your cortisol, which lowers inflammation short term.

This is great news! I have wished for a quality ME-podcast for a long time:) will listen, rate and review when I can. :emoji_clap::emoji_clap::emoji_clap:

Maybe the point isn't really to educate them, but just to spread awareness of the disease and some basic facts. Like your Trivial Pursuit experience, players may not remember anything significant about the disease, but possibly they will remember to have heard of this disease before (and that...

Me too. My new doctor wants me to try it as her patients generally do well on it and it’s not associated with any big side effects. From what I gather people generally sleep better and have less pain issues (when it works). Would really love some more nuanced reviews, though. It seems from what...

I'll help as much as I can:) Very limited cognitively these days though, so I have an easier time of it when there's someone else's suggestions to build on. Awaiting brilliant ideas to inspire me!;)

"What duck?"

:rofl::rofl::rofl: :emoji_duck:

It's a pity that the map only shows the United States, there are so many donations from all over the world! Anyway, only $176 to 78%:) You've inspired me to check my actual conversion rates @NelliePledge :brb: ETA: Ha! I'll need to scale up my second installment, turns out I'm almost 20%...

I’m trying to think of ways you could limit vibrations (I feel like that’s a big part of the overstimulation effect), but it’s not easy in a moving vehicle. I seemed to do slightly better in an electric car, I’m assuming because of less noise and less vibration. Maybe a foam mattress to absorb...

@Allele I think you may be on to something. I haven’t tried it yet for driving, but I use BCAAs after other demanding activities to limit the backlash. I’m planning to use it during and after my next car trip to limit fatigue and PEM. Will report back (next weekend probably). I combine a BCAA...

Wow, @erin , you are obviously missing out here. The possibilities!

Great article from the mother of a ME/CFS patient today in "Dagens Medisin" (Medicine Today): in norwegian: https://www.dagensmedisin.no/artikler/2018/04/17/diagnoseforvirring-og-legers-kompetanse/? google translate...

@Mattie I don't really know that it is the nervous system to begin with, just what it feels like to me:) It could be systemic inflammation and that's why the ibuprofen helps, but either way to me it feels like it's calming the entire system down a bit. I'm still not enjoying the ride, but I feel...

Hi @Mattie so sorry you’re struggling with this. My intolerance of driving is not quite as bad as yours, but it’s similar. Even short bus or tram rides can wear me out faster than almost anything else. I can manage up to two hours in the car, but no closer than a week apart. This allows me...

Shared on fb and made an effort to guilt friends and family into buying me donations for my upcoming birthday :party: ETA: Sorry, obviously I meant to write motivate :angelic:

@Manganus everything else is upside down with this illness, so maybe it shouldn't be surprising that I get more sleepy while the entire country is getting more awake and energetic :rofl: ETA: this is certainly the scenario that best explains the very similar timing from one year to another!