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What makes me incredibly sad are the by now countless people who have put themselves out there today for the first time, trying to raise awareness, only to be completely ignored by their healthy friends and families. What makes me really proud of the ME-community is the boundless support...

:thumbup:

Not a single sentence in any Norwegian newspaper or other media outlet. My guess is they are pretending not to know so they won't get caught up in the shit storm that always follows the ME-debate.

I have no idea. They are very clever people though, I'm sure they will figure something out.

The money for Haukeland (Fluge) will be used for: And Sommerfeldt:

I used to meditate twice a day before I got ill, but after I have had trouble doing it. I feel like this might be related to the change in brain waves. Now instead of spacing out and relaxing I feel like I'm drowning or falling down a black airless hole. Not pleasant. I've tried several times...

I agree it would be great if people could respond to this call in whatever way they feel best represents themselves, sign language, vocal or imagery. My first thought after the video was that it meant praying for death, asking to be released, so I get why some people feel it can give the wrong...

http://www.marieclaire.co.uk/reports/millionsmissing-campaign-me-595261

Signed:)

That’s the problem isn’t it, if I do too much I don’t sleep well and then the following day it takes even less to do too much (even if there’s no PEM), so I’ll probably have trouble sleeping again... This is the most idiotic part of the advise to exercise to sleep better. It’s not a way to...

We should all have one! My best friend took one to a music festival last year, through work, for a young and very sick woman who couldn’t go herself. The patient picked the concerts and my friend lugged the AV1 around (and got a free festival visit).

Already done! Shared the article to facebook as well, always a real plus when someone from utside the ME crowd writes about us. Sent them a thank you on twitter as well.

Yes! This one works!

Sounds a lot like Wyller. He usually resorts to this mode of rhetoric, trying to make patients seem unreasonable for not supporting _all_ hypotheses.

Here’s to Sten, where ever and whoever you are!:emoji_beers::emoji_clap:

Good article, all the right stuff came up. Can’t read the entire thing today so no guarantee that nothing is wrong with it.

This is very sad, Camilla was a great contributor both in our small rtx-crowd and in Swedish media. She did a lot to bring awareness to this disease, even when she suffered immensely. My condolences to her family.

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I think low blood volume is my biggest reason for feeling like crap in the morning. Lots of water, salt and a couple of hours to wake up usually takes the edge of. And a giant mug of coffee.