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Sharing for sight: Text: "Appreciate The Guardian's (@guardian) Science Weekly coverage of ME last week? If so and feel inclined/have the spoons, you can write a thanks to scienceweekly@theguardian.com Hopefully hearing positive responses to this coverage may hopefully encourage future coverage"

Text: 'Former NIH Director Dr. Monica Bertagnolli opening remarks on 10/22/25, 12th Annual FNIH Awards Ceremony MB: “We look forward to continuing to work with the Foundation for the NIH on new priority NIH programs such as RECOVER-TLC, which will evaluate treatments for Long COVID”

From Sonia Rao, a new disability reporter for New York Times NYT: 'What Do You Want to Read About Disability?’ (Free archive link) 'Input from readers will help shape our coverage' 'What is our coverage missing? Do you have a story that you want to share? Let us know.’ 'I want to know what...

Some updated names I quickly see listed on the updated agenda for he upcoming RECOVER-TLC workshop on Sept. 9–10: - Dr. Peter Rowe, Johns Hopkins - Dr. David Kaufman, Center for Complex Diseases - Jessica Martinez, Gates Foundation - Dr. Amy Proal, PolyBio

Neurology Today: 'Is Small Fiber Neuropathy an Autoimmune Disorder? 'The Experts Don't Agree on an Answer' 'Is SFN an underlying cause of long COVID and/or a significant cause of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)?'

UConn Today: 'Carolan Awarded NIH Loan Repayment Award in Recognition of her Long-COVID Research’ 'Kelsi Carolan, assistant professor in UConn’s School of Social Work, is investigating the effects of long-COVID on employment, family and social relationships, and mental health’“ 'This award...

Features Komaroff, Brayden Yellman of BHC, Lisa Sanders of Yale, Brittany Adler of JHU Medscape by Miriam Tucker: 'Where Is the Medical Home for Postinfectious Illness?’ 'The COVID-19 pandemic brought a surge of more patients with POTS and infection-associated chronic illness. “What had once...

Contagion Live: 'Remote Long COVID Trial to Evaluate Repurposed Drug Across US’ 'Patients with Long COVID can now sign up to receive notifications about an upcoming fully remote clinical trial led by Scripps Research and supported by the Schmidt Initiative for Long Covid (SILC). The trial will...

Counter Punch: 'Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and COVID' By Leonard Jason & Arthur A. Mirin 'ME/CFS, already a long-neglected condition, has been thrust into the spotlight by COVID-19...' 'Whether this moment catalyzes meaningful scientific and policy advances will depend...

Deseret News: 'How vulnerable are kids to long COVID?' 'Families, doctors take experience with long COVID to Congress to ask for help’ 'Long COVID Families and doctors who treat the condition hope Kennedy keeps that promise'

Just found interesting, from LC patient advocate Charlie McCone who attended Keystone 'Incredibly exciting diagnostic tool potential — @ImmunoFever MIT team is doing nailfold capillaroscopies on #LongCovid patients before and after a NASA lean test, and said the results have been incredibly...

From Bluesky: 'NIH researchers are collecting tissue from people with and without long COVID to see if viral remnants of SARS-CoV-2 persist in the body and whether they differ in type or amount between the two groups.' 8/3/25, NINDS: 'Cross-Sectional Evaluation of Persistence of SARS-CoV-2...

Keystone Symposium: 'Panel Discussion: Long COVID: Mechanisms, Diagnosis, and Emerging Treatments'

From Ezra Spier (LC Patient Advocate was at Keystone Symposium) on Bluesky: 'A couple important Long COVID clinical trial announcements from Keystone that I want to share!" "1. BioVie has announced that they changed their protocol and are now allowing people who have had LC for more than 2...

From Ezra Spier (LC Patient Advocate was at Keystone Symposium) on Bluesky: 'A couple important Long COVID clinical trial announcements from Keystone that I want to share!" "1. BioVie has announced that they changed their protocol and are now allowing people who have had LC for more than 2...

Sharing a handful of screenshots from Nath's talk at Keystone today, as he allowed permission to re-share anywhere "Tuning into Dr. Avindra Nath right now at Day 3 of Keystone Long COVID SymposiumSubject: 'Neurological Complications in Long COVID and ME/CFS' #LongCOVID2025KeystoneSymposium...

Study Finds: 'Promising Blood Test For Chronic Fatigue Syndrome Could Be On Horizon' 'Breakthrough study identifies molecular patterns in blood that could help distinguish ME/CFS patients from healthy individuals' 'This work shows a clear biological signal in ME/CFS'

Smithsonian Magazine: 'Scientists Find Links to Chronic Fatigue Syndrome in Genes and in the Gut Microbiome' 'Two studies present new data on ME/CFS, offering “credibility and validity” to the experiences of patients struggling with symptoms'

Long COVID Families: 'Kids with Long COVID Speak Out on Capitol Hill' 'In July, during Pediatric Long COVID Awareness Week, Long Covid Families brought these voices to Capitol Hill to confront a national crisis. Millions of children in the United States are still waiting for answers, care, and...

UCLA: 'What exactly is long COVID? Different definitions lead to widely varying estimates' 'Despite hundreds of published studies & millions affected worldwide, the medical field still lacks a clear answer' 'The study, published August 12 in JAMA Network Open, highlights just how much the lack...