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During a symposium about (long) Covid today at the Amsterdam MEDICAL Center.

If I remember correctly this was to prevent LC and the time of taking the drugs was 10 days or max 2 weeks? That's not enough for an SSRI to show any real effect.

Interesting findings. They'll be testing SSRIs as well, but I'm not aware they've been of much use in ME. This paper says the following. https://www.sciencedirect.com/science/article/abs/pii/S0149291819300712

He's been working with long-COVID physio so I'm sure they're well aware of PEM etc.

L.M. Tak, M. Chrispijn, J.G.M. Rosmalen. There's no abstract so I thought I'd quote this beautiful part in the text: "A somatic symptom disorder (DSM-5) can be classified if there is one or more persistent physical complaints (ALK) that the person concerned suffers from or that disrupt daily...

Thank you. Maybe. I'm really not sure. Maybe she's also back peddling to some degree. I don't think she had so much push back ever. This study really hurt her reputation. Many well respected scientists and patients were unhappy with it. Including with her defence of the study.

It once again shows how funding research done by Rosmalen is often waisted money that should've gone elsewhere...

I wanted to share it but decided not to when I read the recommendations.

Sorry, I'm not completely sure what you mean to say here but my brain isn't fresh today either.

I'm also very confused what distinction she's making. Maybe she only focuses on fatigue whereas the comment in the article suggests full recovery from long-covid of all symptoms? Not sure...

Ruud Raijmakers who's introducing COFFI in the Netherlands via the ZonMw biomedical research program (he was also a coauthor of the Qure follow up study) refers during a talk to the paper by Choutka et al. but still manages to put PIVS, which is PIFS in Dutch, on top of the slide. It's so...

I've added English and Dutch subtitles to the radio program about ZonMw and funding the ME/CFS Lines consortium led by professor of Psychosomatic Medicine Judith Rosmalen. Featuring amongst others @Lou Corsius, his wife Iselle and their daughter with severe ME Céline. fb.watch/n2Grafuq4N/ .

Sander K R van Zon, Aranka V Ballering, Sandra Brouwer, Judith G M Rosmalen, Lifelines Corona Research Initiative. Abstract Background To improve research and care for patients with post-COVID-19 condition more insight into different subtypes of post-COVID-19 condition and their risk factors...

Listen to Argos on radio 1 on Saturday September 2 at 2 p.m. About #MEcvs biomedical research with, among others, ME patient Céline Corsius. Argos is the platform for investigative journalism of HUMAN and VPRO. Via the newsletter of the ME/CFS Association. Which will be about the ZonMw...

Thank you @Trish @Laurie P and @Michelle. I had filmed for other small projects I hadn't started working on yet and didn't know where to start. So when being asked for this interview I had a lot of material at hand. The answers to the questions were recorded in a week. I was not completely happy...

Google translated versions without paywall. https://docs.google.com/document/d/1RExZS00rQhPcmqgs-EcN67_UCDwN3u3guxueaL8PM3E/edit?usp=drivesdk

An interview with #NIETHERSTELD/#NOTRECOVERED for #severeMEday. It was a very special experience for me to be able to speak so extensively about severe ME. About what having severe M.E. means. How it’s affecting me on a daily basis. How I became severe. What people with severe M.E. need. What...

I'm happy they are taking action even if it's just to make a clear statement. Well done by them.

The authors Carla Rus has been promoting SSRIs for long-Covid for a while now. She wrote this paper with Idelette Nutma who is a avid Ivermectin promotor. At the beginning of the pandemic Rus stated that 2/3 of (her) ME patients improved after taking SSRIs. After my criticism they now refer to...