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Schwendinger a 1, V.N. Looser b 1, M. Gerber b 2, A. Schmidt-Trucksäss Dvision of Sports and Exercise Medicine. Abstract: Individuals recovering from COVID-19 often present with persistent symptoms, particularly exercise intolerance and low cardiorespiratory fitness. Put simply, the Wasserman...

I wrote a post about it on LinkedIn and tagged the author. I hope she gets to read it... https://www.linkedin.com/posts/anilvanderzee_qfs-mecfs-longcovid-activity-7140717732290818050-yZcE?utm_source=share&utm_medium=member_android

Not surprising that the FITNET authors are still hyping CBT as effective eventhough it's a sinking ship. Quite painful to read. They're also ignoring this report where children with ME (ICC) rated their experience with CBT/GET. Maybe interesting for @dave30th to write about as well? Survey...

Yeah the latter is my guess as well. Thanks Andy.

Is this new data? Haven't seen Fane Mensah doing research into ME for a while. Sorry not able to read well today.

Talk by Hans Knoop about the ReCoVer trial at the Long-COVID congress in Germany. You also see a view patients who feel they improves a lot due to CBT...

We can only hope that this "trial" will give them more insights in the underlying pathophysiology. I admire them for trying although the setup doesn't look that promising.

Yeah, I agree. I understand what they're saying. It might be true that the push crash cycle worsens the capacity but a reduction is always there. I'm not totally comfortable with their description. On a positive note, it will atleast warn HCP not to push and therfore crash people.

Thanks. Do criticize it. It will be good for a new project or paper. I personally was a bit on the fence about this sentence. It was not part of the Dutch version. "For those post-COVID condition patients exhibiting PEM, the reduction in physical capacity is likely more a result of the...

This article was first published in Dutch for a journal of rehabilitation physicians. I was asked to correct the text. I didn't comment on the biomedical part. It's not perfect as not everything I adviced was added (which I think was due to a limited amount of words they were allowed to use) and...

"Patients with post-COVID condition suffer from fatigue, limited exercise capacity, and post-exertional malaise. Post-exertional malaise is the worsening of symptoms after physical or mental exertion, which reduces the efficacy of most forms of rehabilitation. This article presents the current...

I already see 2 papers published here. One about the Qure study and one CORPUS. There's also FITNET that even the PACE-trial authors themselves criticized. https://www.mdpi.com/2076-328X/7/3/52

In this interview Carla Rus claims that's only about 10% had no effect. Yikes...

It has now officially been published. https://www.nature.com/articles/s41598-023-45072-9#

While I'm not excited about these drugs perse. My response wasn't great; mestinon some improvements but minor and LDN side effects galore and messed up my sleep for a long time. Actually I am not sure it ever recovered, but it could give us some more answers. However the hyping is what gets to...

After my complaints Cort now added this to the blog. Still making it sound a lot better than what it is, but a slight improvement I guess... "Please note, though, that while there have been some remarkable recoveries, some people have not done well at all with surgery, and some people have had...

Not sure if this is the right thread but Cort Johnson posted a blog about CCI with Kaufman and Ruhoy. It's awful! Really awful. Full statements for which we have no evidence whatsoever. It's so painful to read this stuff. How many more need to be harmed by these surgeries before mentioning that...

So what are your thoughts on this paper? It's hard for me to understand any of it really. Partly due to PEM and partly because it's way above my head anyways.

A Dutch article by Q-Support that supports people with Long Q-Fever that also refers to this publication: https://www.q-support.nu/onderzoek-jongeren-met-qvs/?fbclid=IwAR3RllKLao0zegHgPUD9jzSv-pdTb4omQ-eut_jO4xlsbIj7YjZ8UcEcmjk The biomedical research looks quite interesting, but the BPS stuff...

She continued: Endowed professor of CBT asks 7 critical questions and concludes with: 'Hans, I told you too. I read your article in CBT with vicarious shame. What are you going to do about those patients who have been so let down with your unnuanced statements?