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  1. Grigor

    Petition: The Netherlands: Vote for post-COVID outpatient clinics, closes 13/02/2024

    I think it's mostly to show how many people feel there is the need for specialized outpatient clinics. Hoping the politicians will vote in favor of them. I surely hope they will. (and that the BPS crowd stays the hell away).
  2. Grigor

    Trial Report Videoconference-delivered group cognitive behavioral stress management for ME/CFS patients who present with severe PEM: a RCT, 2023, May

    Thanks dit sharing the bits from the paper. It's what I suspected. It's obviously not as harmful as CFS PACE CBT. For some it might be helpful in regards of coping but other than that it seems they're also overstating what it can achieve. I guess it could be a lot worse...
  3. Grigor

    Cardiopulmonary Exercise Testing in patients with Long COVID: Evaluating functional capacity and exercise limitations, Sperling et al, 2024

    "At baseline, patients were advised to be physically active at as high an intensity level as possible and gradually return to usual sports activities." Yikes, no wonder...
  4. Grigor

    News from The Netherlands

    It was yes. I put a link in the description.
  5. Grigor

    News from The Netherlands

    The pediatrician is Suzanne Terheggen-Lagro at the AMC and the medical psychologist is Kim Oostrom. English subtitles.
  6. Grigor

    From Long COVID to ME/CFS -The Contribution of Clinical Psychology to Diagnosis and Treatment, 2023, Gole (German)

    Besides the reference to the Daniels paper, this seems to be quite helpful. There were some other things but overall not bad at all. Great to see more papers on psychological support and pacing.
  7. Grigor

    Muscle abnormalities worsen after post-exertional malaise in long COVID, 2023/4, Wüst, van Vugt, Appelman et al

    They are already studying people with mild/moderate ME and are planning to hopefully study people with severe ME as well.
  8. Grigor

    Muscle abnormalities worsen after post-exertional malaise in long COVID, 2023/4, Wüst, van Vugt, Appelman et al

    Fantastic to see it finally published. Still have to read it later. Note that they're researching the same in people with ME as we speak.
  9. Grigor

    Review nature reviews cardiology: Cardiovascular autonomic dysfunction in post-COVID-19 syndrome: a major health care burden, Fedorowski et al, 2024

    I left a comment on LinkedIn about it. Let's see what the lead author has to say about that graded exercise therapy bit...
  10. Grigor

    News from The Netherlands

    Did they mention somewhere that they applied for funding?
  11. Grigor

    The Netherlands: Paediatrician Elise van de Putte

    Thanks. I'll post my response here as well. It's quite something that she admits the emotional harm her work caused. Unfortunately she only says that it doesn't work for some, but fails to mention that many have deteriorated due to her treatments. She keeps promoting CBT as if nothing has...
  12. Grigor

    News from The Netherlands

    Thanks. I was about to share it here. It's quite something that she admits the emotional harm her work caused. Unfortunately she only says that it doesn't work for some, but fails to mention that many have deteriorated due to her treatments. She keeps promoting CBT as if nothing has happened, so...
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