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Ruud Raijmakers en Jos van der Meer in the Dutch journal of Medicine: "The IOM also retired the term ‘chronic fatigue syndrome’ (CFS), replacing it with the suggestive name ‘systemic exertion intolerance disease’ (SEID)." "prognostic factors (recovery is limited when complaints are attributed...

Roundtable about the "Mechanical Basis Model/brain stem. Key to understanding ME. With Jeff Wood, Michael Vanelkzakker, Brayden Yellman and Thomas Varley...

This seems to be the paper? Still have to read it, but it looks interesting.

They've performed the same biopsies in people with ME now and are analyzing the data. I presume he's basing his comments on preliminary data.

If you're talking about Jos van der Meer. He received some badge of honor from them for his fight against homeopathy. The association against quackery referred to ME as a pseudo condition.

Co-occurrence of tethered cord syndrome and cervical spine instability in hypermobile Ehlers-Danlos syndrome. https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2024.1441866/full Haven't read it yet so I can't comment on it.

A blog about the brainstem in relation to ME which also touches on CCI surgeries etc. I complained about it on Twitter that it didn't mention any of the negative outcomes of the surgeries. He was so kind to add it. Sorry to see he has a friend who didn't benefit from the surgeries either...

This is the study on bedrest. https://www.cell.com/cell-reports-medicine/fulltext/S2666-3791(23)00601-8?_returnURL=https%3A%2F%2Flinkinghub.elsevier.com%2Fretrieve%2Fpii%2FS2666379123006018%3Fshowall%3Dtrue

"Anil van der Zee and I first connected in 2016, when he invited me to Amsterdam to give a talk at a screening of Ryan Prior’s documentary about his own illness, Forgotten Plague. Anil was already home-bound from ME; he organized that event from his bed. We didn’t meet during that visit–he...

There's also a couple of collaboration with the Netherlands that are working on it as well but I agree that I wonder why they didn't do it themselves before. I'm not sure how costly it is...

This paper appears rather confused, and its recommendations are unhelpful. While it emphasizes the importance of preventing PEM, it also seems to somewhat encourage exercise. Given that many people were already quite active, I personally would suggest the opposite, recommending exercise only if...

And dedicated to Lauren:

Very critical commentary, but it did seem quite surprising to see serotonin pop up as such a significant finding when it hadn't been before.

How convenient...

Interesting but indeed not representative of everyone who undergoes antidepressant withdrawal.

An article has been published on the paper: https://www.sciencealert.com/antidepressants-could-trigger-some-cases-of-chronic-fatigue-syndrome?fbclid=IwAR0IUTNXDLyk4Z7-sscIilVYj8VTbj6rmmuDOZLof9UhMHApPS-nVp5rc7k

Rene Lutter gave an interesting talk about the findings during a symposium organized by C-support. I added auto-generated subtitles. Original video in the description on YouTube. They seem to have progressed a bit further than the paper I think.

I thought it was a good response. Loved the bit about fever and tonsils. Not too sure about the bit about the exercise programs when people feel ready to increase their activity levels. Overal I'm quite happy with this debunk. Curious what my friend Hans Knoop will think about it.

Article VGCT on the matter: https://www.vgct.nl/nieuws/post-covid-zit-niet-tussen-de- oren/

Response Hans Knoop: