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Judith Rosmalen is also part of this European project called LongCovid Project. She explained that her Dutch study would be partly funded from a European collaboration. What I didn't know that 3 of the project leaders are psychosomatic medicine "specialists". Liira's work is awful! Yikes.

I suspect you'll have to approve to that. If many patients refuse to do so they'll have to adjust their plans in regards to sharing. I will definitely not want to share it for sure!

Yes, but they will add other criteria like ICC, CCC, IOM afterwards. Doesn't change the current state yet and I guess it will still be self-reported.

I'm not sure what you mean by that? We only know what was mentioned here in the thread.

Trial By Error: Dutch Agency Awards Big Biomedical ME/CFS Grant to Judith Rosmalen, Professor of Psychosomatic Medicine https://virology.ws/2023/04/26/trial-by-error-dutch-agency-awards-big-biomedical-me-cfs-grant-to-judith-rosmalen-professor-of-psychosomatic-medicine/ Thank you @dave30th

Not much. She's new to the mix and working together with Rosmalen. She's a postdoctoral researcher at Erasmus MC. That's all I know. It could be interesting. They forgot to mention PEM as a symptom in their article. She still has got some learning to do about the condition. That being said...

Yeah, just heard about it yesterday. Pretty awful...

We need a similar switch Crawley > Ponting, Rosmalen > someone not MUPS/CBT/Fink/Sharpe/Wessely etc. related.

I sincerely hope you will not... Yes they will. Emphasis on will. They have not yet been.

I'm quite happy with the Amsterdam group but I agree with what @Arvo wrote. I'm also very hesitant to get really excited about the group in Groningen. Most research looks pretty good on paper, but we need more information on what and who's involved. Also the Lifelines cohort is based on the...

The ME/cvs Stichting who's donators were part of the study wrote a summary of the study. The Stichting is a bit controversial as they've worked with CBT/MUPS proponents in the past and probably will do so again as they're quite keen on working with professor Judith Rosmalen for the biomedical...

I had emailed with Systrom about this and he said it was only done whilst being on Mestinon, but they failed to mention that in the paper... He did explain it later on in a talk but I felt it was rather problematic to publish the paper this way.

Interesting. I wished they would've been clearer about CBT/GET after recommending graded exercise in their previous paper.

Here's an interview with her around the same time: https://www.trouw.nl/nieuws/chronisch-vermoeid-en-fel-tegen-therapie~bffc3a3f/

The Dutch Health Council 2018 labeled ME just like the IOM report as a multi-systemic disease. This article didn't mention this fact, but that's the reason why it understandably was used. Regardless if it is a correct discription It was the new "official" discription of "ME/CVS". Omitting that...

This was extremely boring and about nothing. I mean some interesting bits, but overall blegh. I had discussions with Slatman who didn't understand why people objected to CBT/GET because cancer patients also get CBT and you don't hear them complain etc. Reading this article she seemed to have...

We've seen him make statements like this before. I hope he's right of course, but I'd prefer if he would just come out with this news once we're actually able to read about it and judge it for ourselves. Not a fan of hyping stuff beforehand when people are desperate for answers.

Interesting study building on the findings by Goebel.

I don't have the brainpower to read it at the moment. I agree with the title. With the abstract I'm less impressed.

Yikes, but then again. Any treatment can have dire outcomes for some people. Let's hope it's not the case for the majority.