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Starts today https://recovercovid.org/sites/default/files/docs/RECOVER-TLC_Workshop-Agenda.pdf

Well I’m glad he has Longxuetongluo on his list—go look that one up.

I think I need a microscope to read that list.

Mentions RA @Jonathan Edwards https://www.nytimes.com/2024/09/16/opinion/inflammation-theory-of-disease.html?unlocked_article_code=1.LE4.-lTA.n840jCDUEDEA&smid=url-share

Twitter thread from the group

Pregabalin

Davenport and Seltzer are fine! So is Lipkin! I even like Nath! It is not about positive interactions. My criticism is that if they are interested in researching Covid triggered MECFS, then there are better, more established scientists they could invite. I don’t really wish to litigate this...

Nath is the only dedicated ME/CFS speaker and they have also invited Tonix pharma that is trying to make big money off of a sublingual formulation of cyclobenzaprine. https://www.tonixpharma.com/tnx-102-sl/

Merged thread NIH Long Covid meeting September 23-25 2024 This is the agenda for this meeting. https://recovercovid.org/sites/default/files/docs/RECOVER-TLC_Workshop-Agenda.pdf If they had any interest in addressing Covid triggered MECFS, then this is really bad. Like maybe two people here...

This is the agenda. It looks really bad. Like there are only one or two people who have an understanding of MECFS. https://recovercovid.org/sites/default/files/docs/RECOVER-TLC_Workshop-Agenda.pdf

https://www.healthrising.org/blog/2024/09/09/ron-davis_working-group-2024-meeting/ Of Firehoses and Hope: An ME/CFS Advocate’s View of Ron Davis’s 2024 Working Group Meeting

He doesn’t spill any beans.

Step counts before and after treatment.

https://www.writingruxandrabio.com/p/is-progress-in-medicine-too-slow In which I discuss why people with different backgrounds disagree on this question Also https://www.writingruxandrabio.com/p/why-havent-biologists-cured-cancer

I think they took the antibiotic?

What did they take???

https://wapo.st/3TFLe3l Researchers found that people with upper gastrointestinal conditions were far more likely to develop Parkinson’s disease later in life

Rob Phair 2 patients who improved greatly from Jak stat1 inhibitors.

For a bunch of reasons, I don’t really have any problem with the idea of a closed meeting. I do sort of have a problem with them starting that the reason for this closed meeting is so that they can present “unpublished data”. Actually the reason you have science meetings is so that you can...

now it’s lightening talks. 2 min. 1 slide. First is Tess Fallor on AmoxiClav induced remission events. Ugh!