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  1. IanMcPhee

    Advice for difficulty texting on smartphone due to issues with fine motor skills/coordination

    Would a tablet with a SIM slot be an option, if you don't need to be carry it on you? Or a keyboard for a smart phone? You can get ones that connect wirelessly that also have a track pad, or also you can just use a regular USB keyboard?
  2. IanMcPhee

    Poll - In your opinion, is it worth experimenting with therapeutics of unknown efficacy?

    Thank you @JemPD & @Shadrach Loom . Dad and I did sometimes run the trials for each other. They were 1.5 blind trials, on account that whoever was running the trial could actually remember if it was a dose week or placebo week! The actual reason I started doing something like proper trials, is...
  3. IanMcPhee

    Poll - In your opinion, is it worth experimenting with therapeutics of unknown efficacy?

    I will try various supplements or herbs if they are low risk, have some scientific evidence of effectiveness, and are cheap enough not to cause any financial hardship. If possible I also blind trial them, and take some sort of reasonably empirical measurements. This usually means trying to find...
  4. IanMcPhee

    The Draft Report by the Institute..[IQWiG] Does Not Provide Any Evidence That GET and CBT are Safe and Effective treatments for ME/CFS, 2023, Vink et

    That certainly seems very familiar. To the extent you'd think they copied PACE's homework. Glad to see there's scientific pushback, and I really hope it gets no further than the draft report, for the sake of German sufferers.
  5. IanMcPhee

    Snippets from White P et al. "Eight major errors in the review process and interpretation of the evidence in the NICE guideline [...]" [for ME/CFS]

    I'm sure they are trying to push back, I'm just really not sure how effective it will be. My feeling is it will be harder for them now, as they did get to present their lack of evidence to NICE, but I'll happily admit I don't have a deep knowledge of that world.
  6. IanMcPhee

    Snippets from White P et al. "Eight major errors in the review process and interpretation of the evidence in the NICE guideline [...]" [for ME/CFS]

    Having only just caught up with this, it seems very much like demanding a retrial to properly take into account the evidence you still don't have. There doesn't seem anything substantially new that wasn't covered when the new NICE guidelines were created.
  7. IanMcPhee

    Fundraising for UK ME charities in memory of Graham McPhee

    Thank you, that's a really nice thing to say.
  8. IanMcPhee

    Fundraising for UK ME charities in memory of Graham McPhee

    Thank you so much everyone, it's really amazing.
  9. IanMcPhee

    Fundraising for UK ME charities in memory of Graham McPhee

    @Sean @Peter Trewhitt Thank you, please don't feel any pressure to donate though. I realise the Tuller funding is also running and just as worthy of supporting. @Louie41 Thank you. Sorry you had difficulty with the online donations. I haven't been able to find out what the issue is some people...
  10. IanMcPhee

    Fundraising for UK ME charities in memory of Graham McPhee

    The funeral directors have got back to me, and they usually total it up including any cheque donations 6 to 8 weeks after the funeral, but the donation link can stay up as long as needed.
  11. IanMcPhee

    Fundraising for UK ME charities in memory of Graham McPhee

    Thank you so so much everyone, we were amazed to see the amount when I looked today! :heart: @Joh & @Sean I will ask the funeral directors who set it up for us about your queries and get back to you.
  12. IanMcPhee

    Fundraising for UK ME charities in memory of Graham McPhee

    @Trish and @NelliePledge Thank you, and to everyone who has donated! That's an amazing amount! :)
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