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Here's an excellent opportunity for those who have yet to see the documentary "Unrest" to view it, and also share it, with all those friends and family who really need to be educated about ME. The following arrived in an email from the "Unrest" Global Impact Director this morning...

This article published on November 9, 2017 might be of interest to those in the U.K. Here are a few excerpts: "A Senior Judge Has Suggested Charging The Government For Every "No-Brainer" Benefits Case It Loses In Court Britain’s most senior tribunal judge says most of the benefits cases that...

I've had two treadmill tests post-ME -- the type that measure heart but not lung function. Although not hooked up to the breathing apparatus that measures oxygen consumption, anaerobic threshold, etc., I believe these would give an indication of my response to a one-day CPET test. The first...

Chronic fatigue syndrome is NOT all in the mind - but caused by changes in brain chemistry, a study finds "Spinal taps before exercise showed miRNA levels were the same in all participants suffering from chronic fatigue, Gulf War Illness and a control group. But chronic fatigue syndrome...

@Little Bluestem The 1mg once/month dose recommended by your physician is quite conservative. My first experience with B12 injections was only a few years post-onset. These were 1 ml injected weekly at my physician's office. Initially they gave me "pep". However, my experience has always...

Here are a few resources for Canadians, and other locations around the world: Canadian Association for Suicide Prevention (includes links to crisis centers for all provinces and territories): https://suicideprevention.ca/need-help/ Online Lifeline (includes broader categories of crisis for...

Today, I received this email from Margaret Parlor, President, National ME/FM Action Network. Most significant is that the conference is being funded by the Canadian Institutes of Health Research -- the same organization that previously denied funding for ME research because it is "not a...

@NelliePledge I feel your frustration. I've been diagnosed almost 28 years, and have seen no difference (improvement) in interest from friends and family. Of course, in my part of the world, there is virtually no media coverage of the illness. I hope the level of apathy I've experienced...

@Squeezy I have no ideas, or theories. I have the same question you asked above about Hashimotos. I do have anti-thyroglobulin antibodies, but my number was described as being in the "normal range". I would have thought you either have them, or you don't. Does everyone have...

I believe you're right, @Scarecrow . Thanks. I did a search for "nystagmus and CFS" and here's what I found: http://www.anapsid.org/cnd/diagnosis/eye.html (Chronic Neuroimmune Diseases - Keep your Eyes on . . . ME/CFS) http://www.ncf-net.org/forum/eyesofME.html...

@Allele I'm also not "on" social media, although I do monitor it. Perhaps you could provide the following link in an email: https://www.unrest.film/watch It shows all the ways one can view it, and will be updated as things change. Regarding your favourite Old People who are less likely to...

Even better -- now #1 in the U.K. on iTunes:

My vision has changed very little over the years, and with respect to needing glasses for reading, my eyes are more like someone in their 40's than in their 60's. However, accommodation as @Trish described above is a huge problem. If I've read during a long wait before an appointment...

I followed this discussion elsewhere, and although not a decision I'd make (too old to look good bald), I enjoyed watching the videos I found. Here's my favourite: