Search results

My mind just imploded... :)

Good find! I was going by the 1990 Ramsay paper cited by Twisk. It mentions "a complaint of general or local muscular fatigue following minimal exertion with prolonged recovery time," but doesn't mention other post-exertional symptoms that one might associate with PEM. It also doesn't mention...

Well, if the person in this study could effectively recover from severe, enforced deconditioning in just a couple of weeks, I'd say the six month long PACE trial results pretty much prove that deconditioning is not the proximate cause of ME.

So, they're not the same, except when they are. The definitions are different but not mutually exclusive. Post exertional malaise, for example, may fulfill a requirement for the 1994 CFS definition, but it is not mentioned in Ramsay's 1990 ME definition. I have to wonder when the term...

Actually I think it is important to lobby legislators regardless of which party is in power. We need Senator Foghorn Leghorn going to the NIH Budget review meeting and saying, "Now Francis, I see y'all only got $5 million going to this ME/cfs disease thing. Now, I've been gettin' an earful from...

I've always thought it was an amazing coincidence that Tagamet, a front line drug in the treatment of stomach ulcers, was approved for over-the-counter sale in the US in 1995... the same year that the the FDA began to recommend antibiotic treatment for ulcers caused by h. pylori. I think...

Came across this really old tweet...

I wonder what it is when your vision "greys out" like TV static, or goes totally black for a few moments upon standing or rising from deep crouching position. I had this during most of my teen years, but it had pretty much gone away before I got ME in my early twenties. It must have been from...

I suspect that the Mayo Clinic is so convinced of their protean powers to diagnose anything, that they are even more convinced that there must be a psychological explanation when they can't. Humility is not likely their long suit.

From the climax of the classic, 1951 sci-fi/horror film "The THING From Another World." The soldiers prepare to confront the murderous, alien "THING." Lt. McPherson: "You know, I've got a worry.... What if that THING can read our minds?" Lt: Dykes [hefting an axe]: "Then he's going to be real...

Usually, videos like this wind up being fairly equivocal, but not this time...

Dr. Hanson @ 3:33 [bolding mine] Perhaps it's time to declare that there is a biomarker.

I'm pretty sure that the subtext of searching for "perfectionism" in ME/CFS is really based on the idea that patients are regarding minor limitations in their physical function as "imperfections" that are dwelt on too much - thus preventing the patient from "adapting" to them, rehabilitating...

Well, one thing I've noticed is that when the veins in my wrists can no longer be discerned, my blood pressure is significantly higher than when those veins are prominent.

I'm pretty sure that this report is from 2015. Although it is only dated "Tue, Feb 10", 2/10/18 was a Saturday, but 2/10/2015 was a Tuesday - and was the day the IOM report was released. The report also talks as though the IOM report has just been released. Still, an interesting look back. I...

Fascinating stuff! Here is a thread that shows how people can help support Llewellyn King's work on "ME/CFS Alert." https://www.s4me.info/threads/an-appeal-for-help-with-llewellyn-kings-me-cfs-alert-videos.2487/

In the teleconference, Dr. Lipkin said this: [From the NIH transcript] By "the findings that came out of UC San Diego" I assume he's referring to Dr. Naviaux's metabolomics study that resulted in this paper in 2016. Metabolic features of chronic fatigue syndrome

Well, it's good to see that his views are unbiased by personal experience, unlike like some of those pesky members of the IOM panel. :rolleyes:

I can't decide if it's more like "Altered States" (1980), where other modes of consciousness actually can rearrange your molecules... ...or maybe it's more like a World of Pure Imagination. But I always defer to a Higher Authority....

I tend to get tinnitus about twice a year, in late spring and early fall. It usually only lasts a week or two. Sometimes, it lasts somewhat longer. Because of the pattern, I think it must be related to allergies. It "sounds" like a very high pitched sine wave (~7 kHz). It's usually only in one...