Search results

  1. Forbin

    First 3D printed human corneas

    More 3D printers...and that's when they take over. :jawdrop:
  2. Forbin

    CDC responds to false SMC factsheet claim

    Original Revised Other great moments in backtracking...
  3. Forbin

    Worldwide Action: Sign #MEAction’s Letter to Francis Collins by May 16th

    I'm very sorry to hear that @Alvin. I just passed my 35th anniversary of onset. It was at its worst in the first decade but it has gradually improved since then. Your illness may go back even farther than that, but I know that I have never seen a period of greater hope than right now. It may...
  4. Forbin

    Worldwide Action: Sign #MEAction’s Letter to Francis Collins by May 16th

    I used the most advanced tools I could find... a 12 page print out and a fluorescent pink hi-lighter. :) It took a while, but all I did was hi-light all the names that could possibly be male, because they would most likely be far fewer in number than the female group. I then counted the unisex...
  5. Forbin

    Worldwide Action: Sign #MEAction’s Letter to Francis Collins by May 16th

    FWIW, I looked at the first names of about 650 sequential US signatures to the letter. The genders of the first names were: FEMALE...79.19% MALE......18.40% UNISEX...02.41% If you use just the male/female figures (likewise if you add the unisex names proportionally to those categories), you...
  6. Forbin

    CDC responds to false SMC factsheet claim

    Excellent work @Robert 1973! I seem to recall that the SMC has ambitions of establishing itself in other countries, including the United States. If so, asserting that the CDC makes recommendations based on patient pressure rather than on medical evidence is a superb way to make friends and...
  7. Forbin

    Janet Dafoe - The Whitney Plea

    According to this article, Whitney studied Buddhism in India and Nepal. While there, he developed stomach pain and other GI symptoms. He came down with ME a couple of years later. I mention this because, in India, the "prayer hands" gesture is called "Namaskar Mudra," where, combined with a...
  8. Forbin

    Janet Dafoe - The Whitney Plea

    Because I could not find it under "CA - United States," I thought my signature had been omitted, too. However, I found it among those on pages 90-100 (pages 65-75 in Abode Acrobat), which is where they listed the US signatories who did not provide their state or zip code. Of course, this would...
  9. Forbin

    OMF funded research summary 25th May 2018

    This interests me, too. A doctor once told me that my constant dizziness, which didn't seem related to OI, might be caused by constriction of the tiny blood vessels in the inner ear. It seems plausible that "stiff" blood cells might produce the same effect by a different mechanism. I wonder...
  10. Forbin

    24 May 2018 | OMF receive new $1m donation

    How big was that fabulous donation, again? :thumbup:
  11. Forbin

    Interview with Howard Bloom Where He Talks Extensively About Severe ME Viewed Over 500000 Times in 1st Day

    Howard Bloom's Wikipedia page says: By coincidence, Styx front man Dennis DeYoung would go on to develop what his Wikipedia page calls "a chronic fatigue syndrome-like disorder" in 1999.
  12. Forbin

    Interview with Howard Bloom Where He Talks Extensively About Severe ME Viewed Over 500000 Times in 1st Day

    The sleeping in 4-hour chunks thing is actually pretty common... on naval vessels. Smaller vessels don't have enough officers and crew to support more than two sections of watch. Two section watch is basically "four hours on" and "four hours off," so, to get 8 hours sleep, you have to break it...
  13. Forbin

    OMF/Ron Davis Research Update May 2018

    Just some speculation... If enough people with ME are tested, eventually someone who tested positive will go into remission. If they then tested negative, it would correlate the test to the symptoms. If the test was still positive, however, it might suggest that the nanoneedle is detecting some...
  14. Forbin

    Researchers Question “Gold Standard” Status of CBT

    To be fair, according to a 2002 survey, the average length of psychoanalysis in the US was then 5.7 years (longer for certain conditions). Still, in 2010, the New York Times published a story about a woman who had been in analysis for 40 years (not all that time with one doctor).
  15. Forbin

    Researchers Question “Gold Standard” Status of CBT

    When I was in college, um... mumble-years-ago, my psychology professor's initial format was to present study after study showing that psychotherapy did not work. In fact, all sorts of studies showed that psychotherapy/analysis actually prolonged patient recovery from emotional problems (people...
  16. Forbin

    Ideas For Marketing ME More Effectively...

    One problem that occurs to me is that using "ME" as pronoun in a marketing campaign ("Stand by ME," "Forget ME Not," etc...) will have to overcome a hurdle in the US, at least. While the term "M.E." seems to be in such common use in the UK that news presenters use it without explanation, in the...
  17. Forbin

    Brain function characteristics of chronic fatigue syndrome: A task fMRI study, Shan et al, 2018

    Could they instead measure ME/CFS patients against other ME/CFS patients? I'm thinking in terms of stratifying patients by some other test(s) of cognitive impairment and then seeing if their results on this type of fMRI test correlated to their degree of cognitive impairment established by other...
  18. Forbin

    Chance discovery links inflammatory bowel disease with common bacterial gut toxin

    This is probably a very big deal if it's been published in "Cell," one of top-ranked peer reviewed scientific journals. Makes me wonder what else bacterial toxins and their breakdown products are doing that we don't know about.
  19. Forbin

    Ideas For Marketing ME More Effectively...

    I don't suppose I'm the first to have thought of this, but if we want a sort "meme" to encourage people to support M.E. patients and research, this might be a good song to co-opt. The lyrics of this 1961 Ben E. King song seem fairly appropriate and there have been many excellent versions (done...
  20. Forbin

    Worldwide Action: Sign #MEAction’s Letter to Francis Collins by May 16th

    Your right if you apply Jason's prevalence rate to the entire US population, but Jason only measured the prevalence in adults over 18. It could be the same for those under 18, but I don't know if anyone has made that estimate. Applying Jason's value to just the current US adult population you'd...
Back
Top Bottom