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  1. Forbin

    CFS Research Center at Stanford Second Annual Community Symposium Sept. 29-2018

    I hope the symposium winds up on Youtube. The recorded Livestream still takes up too much bandwidth - probably due to compression, or lack thereof. I can see 720p videos on youtube, but this Livestream version plays for 3 seconds, waits for 5 seconds, plays 3 seconds, etc...
  2. Forbin

    Proprioception Dexterity Balance

    I don't know how common this is, but, when my "dizziness" was at its worst, my vision would sometimes appear to be tilted maybe 5~10 degrees clockwise. It was most noticeable when walking down a hallway. It may have had something to do with my eyes not converging correctly, but I'm not sure...
  3. Forbin

    Stanford Community Symposium 2018: Phair, Metabolic traps, Tryptophan trap

    Back in the mid 1980's, on a doctor's recommendation, I took L-tryptophan for sleep once - and only once. That night, I had the weirdest dream experience of my life. It was like I was rapidly shifting between random images - fragments of dreams which only lasted a second. The worst aspect was...
  4. Forbin

    LP coach on research, Lightning Process and ME (Norway)

    This is like saying that there's little documentation that the blind are visually impaired. After all, studies show that their TV's are on more often than those of sighted people!
  5. Forbin

    Ronald W. Davis, PhD's presentation at the IIMEC13

    Speculation ahead: Fluge and Mella thought that it was the concentration of some unknown factor in the blood ("X") that produced symptoms. Below a certain concentration of "X" in the blood, symptoms abated. They reasoned that the patients who responded most quickly to Rituximab were those whose...
  6. Forbin

    Jarred Younger confirms neuroinflammation in brains of ME patients

    Even if the test turns out just to be for non-specific brain inflammation, it would show that ME patients have such inflammation, which would still be a big deal in world where people claim that ME patients can exercise their way to health.
  7. Forbin

    Jarred Younger confirms neuroinflammation in brains of ME patients

    It was a small study, "15 ME/CFS women and 15 age and sex matched healthy controls," but... If this hold's up, it will be a biomarker. That alone would probably qualify it as the most important discovery in ME/CFS... ever. And that could change everything.
  8. Forbin

    What I learned about weight loss from spending a day inside a metabolic chamber

    Apparently, a healthy adult creates 50 to 70 billion cells per day just to replace those lost due to normal attrition. If you've ever seen those Inner Life of the Cell videos on youtube, you get some idea of how much activity is going on in a single cell (albeit requiring only minute amounts of...
  9. Forbin

    Lightning Process - discussion thread

    It must be an effective video. I mean, all through it, the one thought that kept going through my mind was "I feel physically ill."
  10. Forbin

    Ronald W. Davis, PhD's presentation at the IIMEC13

    It might not be easy to get the samples, but I wonder how the blood of sleeping sickness patients would perform when subjected to the nano-needle - or, for that matter, checked for t-cell clonal expansion.
  11. Forbin

    Ronald W. Davis, PhD's presentation at the IIMEC13

    Well, it can't be exactly African Sleeping Sickness, since, untreated, that will kill you in a few months to a few years, depending on which type you get. The East African version kills you most quickly, which is interesting, as it is the type in which it is more difficult to detect the...
  12. Forbin

    Ronald W. Davis, PhD's presentation at the IIMEC13

    Sleeping sickness only manifests once the trypanosomes cross the blood-brain barrier. Once they do so, the trypanosomes apparently induce sleeping sickness as a consequence of their manufacture of the molecule tryptophol. There's something else in the body that can produce tryptophol, though -...
  13. Forbin

    Ronald W. Davis, PhD's presentation at the IIMEC13

    But if we were living in the Matrix, would the Matrix allow the movie "The Matrix" to be made, thus making people suspicious that they might be in the Matrix? Would I even be allowed to write this post to discuss... wait a minute - there's a knock at the door.
  14. Forbin

    Ronald W. Davis, PhD's presentation at the IIMEC13

    It's interesting that both Ron Davis and Nancy Klimas think that ME is a "metabolic trap" that should turn out to be fairly easy to "escape" once it's understood. Are they working together on this idea, or have they just come to this conclusion independently? Along the same lines, has anyone...
  15. Forbin

    Machine Learning-assisted Research on ME/CFS

    Well, according to this webpage "Liver disease can be a complication of inflammatory bowel diseases (IBD), such as ulcerative colitis (UC) or Crohn’s disease." Some of the microbiome work done so far has shown similarities in diversity between ME/CFS patients and those with IBD, though I'm not...
  16. Forbin

    Myalgic Encephalomyelitis (ME) or What? An Operational Definition, 2018, Frank Twisk

    I've wondered if this kind of thing might be related to something called "sensory gating," which is the ability to filter out extraneous sensory input. It's illustrated by the "cocktail party effect" in which it is possible to ignore all but the desired conversation. Perhaps defects in "gating"...
  17. Forbin

    Myalgic Encephalomyelitis (ME) or What? An Operational Definition, 2018, Frank Twisk

    I thought I would chime in on this, since disabling "vertigo" was a major feature in the first decade of the disease for me. I'm surprised that there is actually a name like "Supermarket Syndrome." Large, enclosed spaces, like supermarkets or "big box" stores like Walmart, didn't exactly trigger...
  18. Forbin

    Myalgic Encephalomyelitis (ME) or What? An Operational Definition, 2018, Frank Twisk

    To me the interesting thing is why ME occasionally occurs in infectious clusters at all. Infections obviously play a part in triggering it, but there may be some other highly localized co-factor that accounts for it occurring in "epidemics." The "co-factor" might not be the same in every case...
  19. Forbin

    CFSAC charter has not been renewed. Solve, #MEAction and Occupy ME all call for action.

    I'm pretty sure that Gustavo Ceinos is a Commander in the US Public Health Service. The Public Health Service is one the seven "uniformed services of the United States," which, along with the National Oceanic and Atmospheric Administration (NOAA), is one of the two which are "non-combatant." The...
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