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+1. I think that psychosomatics, broadly defined as the belief in mind over matter, is the most insidious and destructive false idea of them all. In no small part because everybody, understandably, wants it to be true, and it manifests itself in myriad forms. But it is false. We are finite...

And what is the penalty, the disincentive, for getting wrong? Apparently not even patients dying seems to invoke any real concern in them about how they do things and treat us. I think it is entirely this now. Medicine – especially the UK branch, the original epicentre and still the...

I think it was @Peter Trewhitt who pointed out a while back that the basics of experimental psychology were figured out fifty years ago. The BPS club have completely failed to deliver a robust explanatory and therapeutic model by those standards, so they have simply downgraded standards until...

And don't want to, for the most part. A tube of chemicals.

I have sometimes wondered if there is a lateral axis component to ME/CFS.

Yep, need to wait for the September stuff.

The statements about ME/CFS being biological, potentially fatal, and in urgent need of competent adequate services, could be read as a legal warning to the medical profession to get its act together.

+1 Because it is important to know why there is a reduced and sometimes an absence of capacity for action, what is causing it. For both political reasons in dealing with psychs, and for scientific reasons in understanding and developing management and treatments. It is necessary to know if a...

While no doubt there are some good reasons to avoid naming diseases or syndromes after people (or places? i.e. pronouns), there are a couple of downsides to requiring a name to reflect some supposed distinguishing characteristic (symptom or cause): First, it biases perceptions, as we have seen...

Walz could be good for us.

Yep. They fear us alright, as they should. Not because we are any physical threat to them, but because we are onto their shabby cruel game and are successfully pointing it out to the world.

+1

Also, asking patients with the experience that ME patients have had of sustained extreme focus on the (alleged) psychological component and pressure to report a good outcome is going to be fraught with difficulties, to put it mildly. About as problematic as it gets for obtaining reliable results.

Yes, this is a systemic failure. Obviously, particularly early on, there are a small number of individuals who have to take a very large chunk of the blame for kicking it all off and entrenching it (and continuing to do so to this day). But ultimately the problem is only going to be solved at...

Nor meaningful, practically useful content.

Losing a child is hard enough for any parent. But when it is your only child, and in these circumstances... :cry::cry::cry:

Because we have to. For two reasons: it has been turned into an unavoidable issue by the psychs ruthless exploitation of it, but also because understanding how volition works and doesn't work in ME/CFS is part of understanding ME/CFS. Of course, I don't mean in the sense that our volition is...

It also starts running into issues with how an organ is defined. For example, is the extra-cellular matrix an organ? The amorphous component of it another separate organ or sub-organ? What is the difference between an organ and a system?

Well it certainly won't suddenly reverse everything, that is never going to happen. But all this stuff adds up.

And anything using Oxford is worse.