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Mayo really are all over the place, aren't they. :grumpy:

Problem being that (far as I know) all other criteria are more restrictive and less inclusive, so anybody diagnosed with those other criteria are going easily meet the 1994 CDC and especially the Oxford. In which case the disingenuous can argue GET can be safely used anyway on those patients.

When outcomes are subjective, investigators should ensure wherever possible patients and outcome assessors are blinded,..." Or use objective outcome measures alongside the unblinded subjective measures. Either (or both) is fine. Neither is not.

Pride cometh before the fall. Pity they are taking patients down with them. Besides, seems to me they are more concerned with being precise (consistent) than accurate (correct), though obviously in an ideal world they would be both.

The diverse symptom presentation indicates that ME/CFS is likely to have a multifactorial origin. I don't see how that conclusion is justified.

Done. First of two this time around. :thumbup:

L-MBT focuses on increasing awareness of bodily sensations Oh FFS. I thought the problem was that we paid too much attention to our bodies? But now you are saying we don't pay enough? Make up your freaking minds. body awareness was assessed with the Multidimensional Assessment of...

Interesting.

Superficially this is a reasonable approach. But will happen is that the failure to find a known physical cause will give licence to the functional interpretation to run free. It is a very effective political tactic. How robust are the physical assessments going to be? Will it be a panel of...

As the BPS club know very well.

From the Daily Mail article: Bald face liar. It is far more than a "group of people with chronic fatigue syndrome", as he damn well knows. Just another round of the shameless gutless misrepresentations of the facts. Coz the BPS cult got nothing else. In the bargaining phase, I see.

I think it is pretty clear that just about every finding and symptom so far in The Great ME Saga are the downstream consequences of the primary pathology, often a long way downstream. Which is why there are still no consistent findings, it cannot be well defined, and there are no clear answers...

That consent form has to have been written by either an AI bot in training, or maybe a subversive performance artiste.

Why is it still being called 'chronic fatigue syndrome'? Is that a bad sign?

This one could be useful, if done well.

:emoji_popcorn::speechless: :sneaky:

Newsflash: People with life devastating untreatable stigmatised mistreated disease are unhappy and concerned about it and the serious effects on their lives. Read all about it! Tomorrow: Dog bites man, while bears shit in the woods. Next week: Humans Need Oxygen, Water, And Food! The...

Why is pacing difficult for us? - Bio-psycho-social reasons So close, and yet...

I have no idea what is causing ME, and neither does anybody else, at this stage. But I would not be surprised if it was enteroviruses. That would tie a lot together in one bow.

NICE’s rejection of graded exercise therapy for myalgic encephalomyelitis/chronic fatigue syndrome has been challenged by many specialists. The vast majority of whom are either ignorant of the real story (possibly wilfully so), or have a serious conflict of interest in protesting the NICE...