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Plus, from the same team and year, The BPS club knew (or had no excuse for not knowing) this stuff 25 years ago, yet they have stubbornly stuck to the deconditioning claim to this day. How is is this not straight scientific fraud?

Arse covering. They don't want to admit they have no explanation nor effective treatment.

Wait, what? You mean there are still important things to learn about how the body works? I'm shocked, I tell you. Shocked

I have some signs of Sjogren, like more-or-less permanently (moderately) enlarged and sore glands, and reduced saliva flow (to the point where I need to keep water handy, and use moisturising oral gels at night, and I have had doctors and dentists remark unprompted on the oral dryness). Did...

Yep. Very poor reflection on the standards of peer-review in this area.

Even if they were not the best quality, at the very least they should have been followed up with better quality studies. Why weren't they?

Clinical opinion is the lowest level of formal evidence ranking in medical science. For good reason.

Hasn't been much so far. To the contrary, they just get ever more stubborn and defiant. Denialism par excellence.

Exhaustion is a much better word than 'fatigue'.

In fairness to Biden, he does need the cooperation of both houses of Congress. They are the ones who pass the budget, or not. The president can only put in a budget request.

Yep. Propaganda works, unfortunately.

I hope so. Would be nice to get rid of this chronic rhinitis.

Me neither. Me too. Got sick at 20. Meanwhile, 40 years and a completely trashed life later, with virtually no possibility left of having any of it restored, nor apparently even being allowed to live out my remaining days without the constant threat of arbitrary psycho-tyranny being visited...

Completely agree. The worst thing we could do is allow some kind of political bargain that gives the BPS club jurisdiction over some patients in return for giving it up over the rest of us. That would be unforgivable. The more things change, the more they stay the same. The BPS club are...

Huge problem here is that an infectious onset/trigger isn't necessarily obvious. Non-symptomatic Covid being a recent example. It is possible that all ME has an infectious onset/trigger. But we just don't have the technical capacity to determine that in an individual case, at this stage at...

Sounds like the usual slick nonsense of superficial modification of questionnaire response behaviour (i.e. discouraging negative responses), and distraction techniques.

Exactly. They deal with that rather critical possibility by simply not allowing it into the discussion, by rejecting both adequate controls and falsifiability.

That would be a novel approach from them. But the cynic in me says that they are just trying to rebrand the same old shit as an exciting new approach, never before tried, and clearly in need of lots of funds and influence.

functional illnesses being characterised by the fact that they are made worse by exertion. ...people with these diseases can return to a normal life with the help of pacing. Pure sophistry and brazen hijacking. Words cannot mean anything the author wants them to. You cannot just arbitrarily...

“The right people have to be there, someone who knows their stuff,” recommended Stingl. “That will be the big challenge.” I wonder if they realise just how big a challenge it might be.