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  1. Sean

    How patient input helped create culturally sensitive multinational instruments assessing post-viral symptoms, 2023, Jason

    Not criticising this particular paper or its authors, but I really wish post-infection was used instead of post-viral.
  2. Sean

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    The "motivated' bit is a red flag too. I have no doubt they are dedicated and motivated. Just not to serving the interests of patients.
  3. Sean

    Post-Exertional Malaise - a discussion including defining and measuring PEM

    What @Trish said. For me PEM is the increase in overall symptom expression/intensity, highly disproportionate to the preceding effort (i.e. non-linear), with a major delayed component (≈ 12-36 hours). I have learned, to some degree, how to avoid provoking it any more than necessary, but at a...
  4. Sean

    Increased risk of functional neurological disorders following SARS-CoV-2 vaccination 2023 Pilotto et al

    Increased risk of a FND diagnosis after [checks notes] anything and everything.
  5. Sean

    Mirror: Tory minister demands comedian Ricky Gervais apologises for branding ME sufferers 'lazy' in offensive joke

    I agree that no subject should be off-limits to comedy. But how it is done is where the limits kick in.
  6. Sean

    New Alcohol Sensitivity in Patients With Post-acute Sequelae of SARS-CoV-2 PASC: A Case Series, 2023, Eastin, Bonila et al.

    Worth noting that beverage alcohol contains a lot more compounds than just ethanol and water (up to several hundred, IIRC), and some of those (e.g. ethyl acetate) contribute disproportionately more to the after effects than the ethanol. So it is possible that we are not reacting to the ethanol...
  7. Sean

    New Alcohol Sensitivity in Patients With Post-acute Sequelae of SARS-CoV-2 PASC: A Case Series, 2023, Eastin, Bonila et al.

    @Milo Earliest I can find with a quick search are Sharpe 1992, and Wessely 2004.
  8. Sean

    New Alcohol Sensitivity in Patients With Post-acute Sequelae of SARS-CoV-2 PASC: A Case Series, 2023, Eastin, Bonila et al.

    Another unusual symptom in common with ME. Alcohol reactions and sensitivity are not well characterized in the literature as it relates to post-viral illness. They have been long reported in the ME literature.
  9. Sean

    Trial Report Cost-Effectiveness of Online CBT for Children with CFS/ME Compared to Online Activity Management: FITNET-NHS Trial Findings, 2023, Crawley

    Long-standing, and very hard earned. In medical science those standards are written in patients' blood.
  10. Sean

    People on long-term sick leave in England to be offered therapeutic recreation

    This is why the military generally don't like conscription.
  11. Sean

    Association of digital measures and self-reported fatigue: a observational study in healthy . . . and chronic inflamm rheumatic disease, 2023, Chaitra

    Maybe persistent difficult-to-manage pain, especially when additionally burdened with misinterpretation and misattribution and mistreatment by doctors and broader society, causes depressed mood? Long shot, I know. But just maybe.
  12. Sean

    A Case Report on Care-Seeking Type Illness Anxiety Disorder after COVID-19 Infection, 2023, Kasi, Lakshmi S. and Moorthy, Bini

    Psychotherapy and medication adherence are challenging in patients with somatic-type delusional disorder since they do not believe they are delusional and do not see why they would need to be treated for delusional disorder. Spot the flaw in the reasoning.
  13. Sean

    Cochrane: Physical interventions to interrupt or reduce the spread of respiratory viruses, 2023, Jefferson et al

    Always said that the first business of those who get power is to arrange things so they are never held accountable for any adverse outcomes of wielding that power.
  14. Sean

    Long Covid in the media and social media 2023

    According to the research council, MRC and NIHR have since 2020 collectively awarded more than £50 million for research on ME/CFS and long Covid. And how much of those funds went to the psychosomatic ideologues? This. And deconditioning.
  15. Sean

    Long Covid in the media and social media 2023

    Nothing has changed. They are refusing to learn the lessons of history. :grumpy:
  16. Sean

    Effect of exposure-based vs traditional cognitive behavior therapy for [FM]: a two-site single-blind randomized controlled trial 2023 Hedman-Lagerlöf

    Primary outcome was the difference in reduction in fibromyalgia severity as measured using the Fibromyalgia Impact Questionnaire (FIQ) Stopped there.
  17. Sean

    Long Covid in the media and social media 2023

    Very good article. a recent study found long COVID patients' quality of life scores were lower than people with advanced cancers like stage four lung cancer. It's déjà vu all over again. There, she sought support from a social worker, thinking they could use all the help they could get. But...
  18. Sean

    Post-Exercise Hypotension and Its Mechanisms Differ after Morning and Evening Exercise: A Randomized Crossover Study, 2015, Leandro de Brito

    The time of day I typically have the most problem with balance, movement, coordination, cognition, and oxygen hunger, is just after awakening in the morning. No matter the quality of sleep immediately preceding it. No idea why that is. But it usually improves quickly.
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