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  1. Sean

    Post COVID-19 syndrome among 5248 healthcare workers in England: longitudinal findings from NHS CHECK, 2024, Dempsey et al

    Is there any area of medicine that has actually benefited from Wessely's influence?
  2. Sean

    News from the USA, United States of America

    I look forward to this novel approach from our premier medical science institutions.
  3. Sean

    NHS England - E-learning Modules on ME/CFS

    4/ It claims ME/CFS is likely several different diseases with similar symptoms. We have no evidence of that. Pure speculation that has no part in clinical advice. My first thought too. I cannot come up with an answer that is both plausible and acceptable. Medicine is clearly broken on this...
  4. Sean

    Connecting the dots: Network structures of internalizing and functional symptoms in a population-based cohort, 2024, Saini et al

    Reminds me of the term convergent evolution, from biology, in which similar forms/features/functions are arrived at in separate species by independent evolutionary pathways.
  5. Sean

    Hypothesis Disorders of gut–brain interaction through the lens of polyvagal theory 2024 Porges

    A positive sign, then, not a diagnosis by exclusion? :sneaky:
  6. Sean

    Essay: The Dilemma of Caring and Doing Research for Severe ME/CFS Patients

    Lovely and well informed piece. This could be a good angle to help the broader public understand what is going on. Get close family and friends to describe their experience of dealing with their sick loved ones and seeing what happens to us.
  7. Sean

    Modeling the burden of long COVID in California with quality adjusted life-years QALYS, 2024, Zhu et al.

    this study points to the potential cumulative impact of mild long COVID symptoms in younger individuals. This is very important, and is why early diagnosis and management is so critical to reducing the long term burden.
  8. Sean

    Review Chronic Fatigue Syndrome: Diagnosis, Treatment, and Future Direction, 2024, Graves et al

    Moreover, there are concerns about patient adherence to GET protocols. Due to the nature of CFS/ME, patients may experience fluctuating levels of fatigue and post-exertional malaise, making it difficult for them to adhere to a structured exercise regimen [47,48]. This variability in adherence...
  9. Sean

    A theory of how to talk to other people about disability

    Forty years into this nightmare, and I still have not figured this one out.
  10. Sean

    Follow-up of patients with post covid-19 condition after a multidisciplinary team assessment: a pilot study, 2024, Wigge et al.

    Seems like an important clue about what is actually going on when they ask these kind of soft questions. Yep. I have long advocated that patients should organise strikes against substandard research methodology and clinical practice. Refuse to cooperate with, submit to, or participate in it...
  11. Sean

    NHS bosses reject calls for specialist ME care, 2024, The Times (London)

    Dear healthcare workers You ain't the victims here. Stop your whining, and get on with facing up to and fixing the problem that is entirely of your making. The sooner you do that, the sooner the pain goes away for you. And for us. Yours etc Very long-term patient with completely trashed life...
  12. Sean

    NHS bosses reject calls for specialist ME care, 2024, The Times (London)

    Those opposed to reform still hold the reins.
  13. Sean

    Chronic fatigue syndrome and multiple sclerosis have reduced craniospinal compliance and dilated pressurized bridging cortical veins, 2024, G. Bateman

    Abstract Chronic fatigue syndrome (CFS) and multiple sclerosis (MS) share similarities regarding their epidemiology, symptomatology and craniospinal physiology. Indeed, the cardinal feature of CFS, fatigue, Stopped there.
  14. Sean

    Maeve Boothby O'Neill - articles about her life, death and inquest

    He did co-sign the pile of steaming dung that is the Anomalies paper not too long ago, and I have no doubt that there is a formal record of his current views on ME, as an NHS commissioner and general medical adviser bigwig, on the government files, which will become public one day. He is more...
  15. Sean

    UK: LBC phone in on ME 8pm, 24th August 2024

    "I have never had such a huge response to any hour that i've done... there is a big story here and there is an investigation that needs to happen." As I have been saying for years, there is a hell of a story here alright, one of the biggest in recent history. Just not the one the mainstream...
  16. Sean

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Me too. Unfortunately the patient community made it very clear at the time it was proposed that they strongly preferred ME. So here we are. :grumpy:
  17. Sean

    News from Scandinavia

    The best way to clear muddied waters is to simply stop stirring them up.
  18. Sean

    Maeve Boothby O'Neill - articles about her life, death and inquest

    As to the name, ME/CFS is the least worst option on the table for now.
  19. Sean

    Maeve Boothby O'Neill - articles about her life, death and inquest

    If not after all that, then what is it going to take? Is entrenched medical bigotry really going to win? Won't happen. There is no world in which Wessely will voluntarily give up being the centre of power and attention, and slip quietly into obscurity. It is simply not in his nature. He will be...
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