4/ It claims ME/CFS is likely several different diseases with similar symptoms.
We have no evidence of that. Pure speculation that has no part in clinical advice.
My first thought too. I cannot come up with an answer that is both plausible and acceptable.
Medicine is clearly broken on this...
Reminds me of the term convergent evolution, from biology, in which similar forms/features/functions are arrived at in separate species by independent evolutionary pathways.
Lovely and well informed piece.
This could be a good angle to help the broader public understand what is going on. Get close family and friends to describe their experience of dealing with their sick loved ones and seeing what happens to us.
this study points to the potential cumulative impact of mild long COVID symptoms in younger individuals.
This is very important, and is why early diagnosis and management is so critical to reducing the long term burden.
Moreover, there are concerns about patient adherence to GET protocols. Due to the nature of CFS/ME, patients may experience fluctuating levels of fatigue and post-exertional malaise, making it difficult for them to adhere to a structured exercise regimen [47,48]. This variability in adherence...
Seems like an important clue about what is actually going on when they ask these kind of soft questions.
Yep. I have long advocated that patients should organise strikes against substandard research methodology and clinical practice. Refuse to cooperate with, submit to, or participate in it...
Dear healthcare workers
You ain't the victims here.
Stop your whining, and get on with facing up to and fixing the problem that is entirely of your making.
The sooner you do that, the sooner the pain goes away for you. And for us.
Yours etc
Very long-term patient with completely trashed life...
He did co-sign the pile of steaming dung that is the Anomalies paper not too long ago, and I have no doubt that there is a formal record of his current views on ME, as an NHS commissioner and general medical adviser bigwig, on the government files, which will become public one day.
He is more...
"I have never had such a huge response to any hour that i've done... there is a big story here and there is an investigation that needs to happen."
As I have been saying for years, there is a hell of a story here alright, one of the biggest in recent history. Just not the one the mainstream...
If not after all that, then what is it going to take? Is entrenched medical bigotry really going to win?
Won't happen. There is no world in which Wessely will voluntarily give up being the centre of power and attention, and slip quietly into obscurity. It is simply not in his nature. He will be...
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