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Leaving aside possible secondary muscle wastage and weakening through insufficient use, I agree about strength. I still have normal muscle strength for my age, maybe even above average. I can still pick up and carry heavy weights, and a number of clinical assessments (mainly physios) over the...

While I agree that there is always the need to have new people coming in and moving up the ranks, it is also important to maintain the corporate memory from the old hands. New hands usually don't know where the bodies are buried, who to trust, the weaknesses in our and our opponent's arguments...

Media outlets in the UK today are under-resourced and this is a complex story. But one of the most important in several decades, and there are no excuses for the media to continue ignoring it, downplaying it, or misreporting it. Some serious deep-dive fearless investigative journalism is...

Was immediate for me, and started with a violent medical event. I woke up fine on a Saturday, and played squash. Went home had a shower, and then did some shopping and had lunch. Came back home and started feeling unwell, which deteriorated seriously over the next hour or so. Had to be taken to...

They have learned the marketing lessons well from the previous attempts at psychologising unexplained health problems. They have a monopoly over a desperate audience, who have nowhere else to turn, and effectively no power to refuse them, and they are exploiting the shit out of it. It is very...

Did they consider that the solution is to stop arbitrarily assigning causation to health problems they don't understand yet?

Same basic experience here. It is one of the most fundamental features of ME/CFS, maybe even the most fundamental, and certainly one of the most important clues.

It is impossible to be too cynical about the state of medicine on these issues.

Trauma has become a fad and an industry, and is out of control. It is being applied to every slightly unpleasant experience. And not just medicine. The general scientific project is struggling, for a variety of reasons.

But we knew from ME/CFS that if this is what we think it is, this post-viral condition, this is going to be hard to get an answer to. Only if you don't do robust honest science on it. Which is what has happened for the last 50 years.

This.

Unlikely to be of benefit for those with nutrient uptake problems.

Yep. It is increasingly appears that the BPS club have successfully hijacked and corrupted the reform process in the UK. Evidence also strongly suggests that they are currently trying to pull the same trick here in Australia with our forthcoming guidelines review. They are utterly shameless and...

IIRC, Walitt is in charge of the ME/CFS program, the LC program, and the GWI program. Just in case anybody had any doubts about the prevailing views within the NIH on these conditions.

I think we are past the point were that can shift them. We are well into putting their behaviour on the public record for future accountability.

The post-truth era in medicine is upon us.

Protect the establishment at all costs.

Which is their aim. More gaslighting of patients, especially new patients, who don't know the science & history of it all and are not equipped with the knowledge to fight back.

This. It is exhausting and dispiriting in the extreme to have keep playing this shitty game over and over with almost every fresh clinical encounter, never knowing what you are going to get, knowing only that you are not in a position of power and largely have to put up with it to get the help...

I think I am in a PEM state all the time. All that varies is the degree and its impact.