Search results

  1. Sean

    UK: New advocacy resource for people with ME in hospital

    For example, antibiotics, which are not really amenable to that kind of titration and ramping to get to the baseline dose.
  2. Sean

    Saline infusions

    I think these need more attention. Pretty sure I have some form of disruption to the water cycle. I seem to process water faster than before, and have had a few bouts of some form of polyuria, even when my bladder is clearly empty, typically lasting a few hours. Whatever the opposite of...
  3. Sean

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    And some pretty extreme prejudice, spilling over into outright bigotry and even a bit of hate.
  4. Sean

    Protocol Understanding patterns of fatigue in health and disease: protocol for an ecological momentary assessment study using digital technologies 2024 Adam+

    I don't have an in-principle problem with questionnaires (i.e. self-report). But I have a major problem with how they are currently constructed, interpreted, and used, especially when used on their own in unblinded trials.
  5. Sean

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    +1 I agree that tactics and strategy have to adapt to changing circumstances. At least one order of magnitude. +1 We don't need large scale funding so much as consistent and well directed funding, that is nimble and can quickly start following up good leads. Though we certainly also do need...
  6. Sean

    "Updates on long Covid and the brain" (The Psychologist, The British Psychological Society)

    Thanks for your efforts on this @Joan Crawford, and your like-minded colleagues.
  7. Sean

    Cross-sectional evaluation of health resource use in patients with [FND]s referred to a tertiary neuroscience centre 2024 O'Mahony, Edwards et al

    Or setting the desired outcome to be a value of one, then picking an arbitrary number and multiplying it by its inverse. Or multiplying and/or dividing one by one an arbitrary number of times. You will, of course, always get one. QED! :grumpy:
  8. Sean

    UK:NHS: Feel Good Tennis for Long Covid

    Even if you lose you still have plenty of love.
  9. Sean

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Nath continued his intimidation and vilification campaign telling advocates that they if they continue to be critical of intramural ME study, future ME research is at risk. If the quality of the research at NIH under Nath is all they are offering us, then stopping it at least leaves us no worse...
  10. Sean

    Quotes from scientists who appreciate the support of PWME

    If you really mean that, Director Bertagnolli, then your first step must be to immediately remove Wallit from his leadership of any ME/CFS, LC, and GWI programs. Otherwise it is just more empty words from the top.
  11. Sean

    Medical students highlight the importance of medical education, kindness, compassion and belief when learning about [pwME/CFS], 2024, Muirhead

    The current younger generation of medicos, those from 1st year med school through to approx. 10 years post-grad, really need to make the effort to get up to speed with what is going wrong in their profession over this stuff, because they are the generation who will have to be apologising for and...
  12. Sean

    Persisting exercise ventilatory inefficiency in subjects recovering from COVID-19. Longitudinal data analysis 34 months post-discharge, 2024, Dorelli+

    A golden opportunity missed: According to our own @Snow Leopard, reduction in power at the ventilatory threshold on the 2nd day is the primary finding in 2-day CPET tests in ME/CFS. This study only did single tests at each time point. Still, a useful paper.
  13. Sean

    Review Inflammatory Markers in Children and Adolescents with Functional Somatic Disorders: A Systematic Review 2024 Hansen et al

    Recent findings suggest that low-grade inflammation has a role in the development and maintenance of pediatric FSDs. The findings indicate that inflammatory response may have a role in the pathophysiology of pediatric FSDs. Hence, not 'functional'.
  14. Sean

    BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program

    That would be good old fashioned convalescence, which is very much out of fashion today. Worth repeating. There is a very serious psycho-social factor in play here. But it is the damage being done by inappropriate assertion by the experts that the problem is primarily a psycho-social one...
  15. Sean

    Long COVID-19 Enigma: Unmasking the Role of Distinctive Personality Profiles as Risk Factors, 2024, Amsterdam et al.

    It's pathetic, isn't it. Just doesn't make any difference what the actual results are, somehow they always get spun into psycho-causation.
Back
Top Bottom