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  1. Sean

    Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+

    The finding that avoidance behaviour mediated change in several outcomes supported our theoretical fear-avoidance model on which DS-CBT was partly based It does no such thing. That avoidance behaviour may well be justified. Is staying away from the edge of a cliff a pathological avoidance...
  2. Sean

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    That is stark indeed, especially the final chart that clearly shows that, if anything, patients were playing a better strategy than the healthy controls. Which hardly supports the patients are misinterpreting/incompetent/imagining/delusional/whatever view. It is also dangerously close to...
  3. Sean

    Opinion Vocational rehabilitation for Long Covid: a roadmap for recovery, 2024, Parkin et al.

    Yep. Every time I have tried to explain PEM to somebody in the health system their eyes glaze over, and it is abundantly clear they don't even start to get it, and most don't want to, and attempting to push the issue is only going to further impair our already fraught working relationship. So I...
  4. Sean

    'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths]

    I was at uni during the time when post-modernism was the Latest Big Thing. It was a disturbing lesson in how gullible and faddish the intellectual elites can be. - There is no such thing as objective truth. - Is that an objective truth? - *crickets*
  5. Sean

    : TV casting call for people living with ME/CFS

    I believe the correct term is 'bang stick'.
  6. Sean

    Illness perceptions, experiences of stigma and engagement in (FND): exploring the role of multidisciplinary group education sessions 2024 Butler et al

    Free-text analysis revealed stress and trauma as the most common causal attributions, Was that before or after they had those casual attributions suggested to them? There were no significant changes in stigma, distress, sense of control or anticipated discrimination. So, a null result, then?
  7. Sean

    ETUDE: Encompassing Training in fUnctional Disorders across Europe

    "An etude is a short, tricky tune that a musician plays mainly for practice or to demonstrate skill."
  8. Sean

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    A particularly nasty and gutless form of bigotry, that is getting very close to hate crimes at times. Sometimes even crossing that line, IMO.
  9. Sean

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    There was a 2.5 year long-term follow-up paper. Some of the control group did cross-over and try CBT/GET after the trial ended. But they were identifiable and enough data was available to compare those who did cross-over with those who didn't, and there was no difference, meaning adding GET or...
  10. Sean

    BBC: How Long Concussion could offer new insights into Long Covid

    That is exactly what they have done.
  11. Sean

    Modern environmental factors

    For me the big indisputable weather correlation is humid heat. Dry heat, within reason, is manageable. But when it gets humid (above ≈50%) as well as hot, the going gets very rough. Tropical summer, especially the pre-monsoon build-up, is bad enough for healthy people, but it is a lot tougher...
  12. Sean

    Esther Crawley

    Now that is interesting. Yep, as long predicted here, they are doing a bait and switch, simply swapping ME/CFS for another, more psychosomatic-friendly, diagnostic label to keep us under their control. They really do think they own us, and nobody, not even the highest levels of their own...
  13. Sean

    News from Australia

    a completely new disease Yeah, nah.
  14. Sean

    BBC: How Long Concussion could offer new insights into Long Covid

    They do love strawman excuses. In fairness, they don't have much else. Certainly not solid evidence.
  15. Sean

    UK: University College London hospitals (NHS)

    But they have the 'resources' to continue right on imposing the old psycho-behavioural regime. They can't even come up with half decent excuses. Or just couldn't but bothered to.
  16. Sean

    News from the USA, United States of America

    And the evidence for this is...?
  17. Sean

    Preprint Persistent symptoms and clinical findings in adults with post-acute sequelae of COVID-19... in the second year after acute infection

    I think the long-term follow-up results for PACE, especially the slopes of the curves at that point, suggest this interpretation is correct.
  18. Sean

    Preprint Persistent symptoms and clinical findings in adults with post-acute sequelae of COVID-19... in the second year after acute infection

    One possible alternative interpretation is that receiving 'expert rehabilitation management' was actually a hindrance to natural recovery. IOW, that patients were better figuring it out for themselves than having an authority figure imposing an arbitrary rehabilitative framework on them.
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