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Great news. Thanks to all who worked hard to bring this about. :):):):hug::hug::hug: That is literally true. But if I recall the history of this correctly, it should also be noted that it was the previous (and very conservative) government, presumably via their health minister, Greg Hunt, who...

Or the 'rest' it can get is very poor quality.

Doctors are not trained as scientists, though they flatter themselves that they are. They are trained as technicians, which they often forget. Engineering has a similar problem. Medicine is still trying to shake of its deeply embedded eminence based model, with limited success thus far. In...

Um, ah, er,... :speechless:

I guess when you don't have a robust evidence base then all you are left with is the marketing.

A few years back Australia medicos got their knickers in a twist about codeine based over the counter meds (with low levels of codeine 12-15mg, combined with 500mg paracetamol/acetaminophen), and got them made prescription only, and virtually impossible to get. It was a major overreaction to...

I am as critical of the NIH on a range of issues as anybody. But we do need to be careful about how we criticise them. There are ideological interests in this world unrelated to LC or ME/CFS, or health stuff in general, who want to basically kill the NIH and any government involvement, and they...

Their origin is multifactorial and poorly understood, If it is poorly understood, then how can they be sure it is multifactorial? and their management is often inadequately defined. Difficult to define something you don't understand, especially when you don't want to understand it. Not doing...

As best I can recall without checking, Wessely did not sign the actual sectioning papers for Ean, but he did submit an expert witness statement to the court supporting it. So he has some responsibility for the outcome.

This is pretty good. Written by Hayley Gleeson. https://www.abc.net.au/news/2024-06-16/children-with-long-covid-dismissed-doctors-myth-virus-harmless/103959078

This is the core message at this point in time, and likely to remain so for some time to come.

What is required is that they are reasonably accurate at recording changes and trends for the individual. It is the variations that seem most important here, though the absolute values do matter as well.

Yes, fine words. But we have heard it all before. So let's wait and see how well those promises translate into meaningful productive actions and results.

@MelbME Nothing to add to the conversation, others have covered it. Just wanted to say a big thanks for engaging here and listening. We don't expect or want to be in charge of research decisions, to be given veto or anything like that. That is what the pros get paid to do. But we do...

Never existed. Was always nothing more than a sop for public relations purposes. Caused some offence?!? Standard non-apology. It is a lot worse than mere "some offence".

Sounds to me like what they are really saying is that it is everybody else who is inconvenienced and embarrassed by these seizures. So patients should have the decency to do it alone, on their own time.

Interesting how Garner and Carson can deliver robust critiques of biologically based studies, but seem blind to the serious flaws in their own studies and claims.

:( All the best to your dad and family, Snowy.

I have learned the hard way over the decades that every time I think I might be going a little too hard on the ME-is-psychosomatic crowd they soon prove me completely wrong. They really are that bad. They really are a virulent cult. It is now beyond any possible dispute that the medical...

Doctors have to say we don't know, we got nothing. Equally patients have to hear and accept it. And not just patients, but also their families, friends, our political overlords, etc.