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Very well said, @Peter Trewhitt. :thumbsup: @PhysiosforME

This. It is stunning how resistant medicine is proving to abandoning an bogus idea that has failed so comprehensively and cruelly.

Exactly. Such features, on their own, pretty much completely falsifies their basic claim. Yet that never stops them shamelessly re-cycling those empty claims.

Yep. Needs at least 2-3 more orders of magnitude in the sample size.

Both of our major supermarket chains (Coles & Woolworths) have a quiet hour (low noise and lighting) once a week for the sensory sensitive to go shopping. I think it came about by advocacy from the autistic community. Once a week seems at least partly token. But it is a start, and no doubt...

Yep. It has not in any sense made me better. It has just helped slow the decline down. Which is no small thing, can even be a critical thing, and we are not in a position to be fussy about what few tools we have to hand. But it is not even a 'treatment', let alone a cure. It is just all we...

Their conditions [LC & ME/CFS] are quite similar, not identical, Way too early to be saying that with any certainty. If I had to place a bet it would be that they are, for all practical purposes, the same, or at the least very closely related.

The BPS club skirt the 'informed consent' thing by declaring us delusional and in denial in some way. It has proved a very effective tactic for them to maintain their delusions and denial about their own behaviour.

I did not mean every one of them, I should have made that clear. But I think it quite plausible that at least some people who otherwise appear healthy can have subtle long-term reductions in performance without noticing it.

One possibility here is that these apparently healthy people do have some, probably quite minor, adverse effects from the viral persistence, but that the way reduced health status is currently defined and screened for is not picking up these effects, including misattribution to other factors...

No idea how good this study is. Too brain dead at the moment to look closely. But at least somebody is trying to pin this down.

Extremely important point.

1. those who were harmed by or been through the GET and CBT generation and have had it eg decades need something different currently to newer diagnosed. I think this is important.

“DS are maintained by a vicious circle of behavioural, cognitive, affective, physiological and social factors of which fear and avoidance are particularly salient.” Yet they cannot offer any evidence for that utter certainty. This is so far outside of widely recognised empirico-logical...

However, pacing is not as easy to achieve as we might think. I think this is an important point that needs to be more prominent. Though it does also open the doors to hacks and opportunists everywhere to play the expert at 'teaching' patients how to do it.

Every relevant significant factor. Not everything needs to be controlled. Figuring out which ones to control, and how, is the key skill here. Yes, and yes.

Importantly, post-exertional malaise—the defining feature of ME/CFS—was equally as common, severe and frequent among pwPCC. If this finding in particular holds up in then it is important. Just confirms the view held by many from early on, including me, that even if they are not exactly the...

Good clue, though. Well worth following up on.

randomised controlled trials It is the controlled bit that is the core. Randomisation is just one form of control, albeit an important one. On its own it is insufficient, however much the psychosomatic club may wish it to be sufficient.

*sigh*