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Definitely important. But... My experience is that PEM is a permanent feature. It is always there, all that changes is how hard it is cranked up. It is also a non-linear response, I think, which is part of why it is difficult to learn how to predict and manage. Even the best management of it...

The shorter programme is based on a new treatment model based on Acceptance and Commitment Therapy (ACT), where exhaustion disorder is seen as an existential crisis resulting from a lack of connection with meaningfulness. The more things change, the more they stay the same.

I don't see an issue with adding a little extra salt to your diet, and making sure you stay adequately hydrated. Beyond that, as with [checks notes] every other explanatory and therapeutic claim I have ever heard about ME/CFS, I await robust evidence.

Still not allowed to donate here in Australia. (Which I don't have a problem with. Better safe than sorry.)

That was my first reaction. There simply is no excuse anymore for anybody, let alone health experts, to deny there is an extremely serious problem with the general phenomenon of post-infectious complications, and the way they have been so persistently ignored and/or mistreated by the medical...

I have no doubt this problem has massively skewed and corrupted attempts to understand a whole bunch of health issues and their causes, including mental health.

Somebody gets it.

If you don't fulfil your end of the 'bargain' there will be consequences for your social credit rating, with all that implies. Not joking. That is where we are heading, NICE notwithstanding.

while the wider multi-disciplinary team focus on more appropriate biopsychosocial holistic and rehabilitative approaches to manage the patient's primary underlying condition. The mantra echoes on.

That is clearly their plan, and which they are currently putting into action. Seriously dishonest and cruel stuff.

Hi, Emma. Appreciate you engaging here. Can I suggest you not use the word 'feel'? It feeds into emotional interpretation bias. The word 'think' is better. Avoids all that bias from the start. Thanks.

:D

It is the ME diagnosis that primarily explains low HRQoL. Demographic factors such as gender, age, income and marital status explain little of the variation in the sample. PEM scores (Post exertional malaise) are very strongly negatively correlated with physical HRQoL, explained by reduced...

And/or some problem with clearing them, particularly overnight during sleep.

The thing is that there's so much overlap between that and long COVID, and the population affected by long COVID is so much larger, and the symptoms are so much more severe compared to ME/CFS, that we decided that what we should do is focus on long COVID Don't know about the rest of you, but I...

Given their track record on this, it could be argued that this fear is in fact entirely rational. :whistle:

...then the results of a rigorous review by the experts." Why do I not feel reassured?

Otherwise an excellent resource.

Not completely sold on that word. Exaggeration of what? It does have some value, in that PEM is an extreme reaction to exertion.

Thanks to everybody who participated and donated. :thumbup::hug: Though the big win here might well be the public exposure. :geek: