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  1. rvallee

    Join the Research Momentum with OMF’s StudyME

    Well, it's pretty easy to sign up. This is not a patient registry, maybe that will come later because it is so badly needed, so the questions are rather simple, mostly simply ask about whether you are interested in participating in a study, how far, and for what research purpose (PEM, brain fog...
  2. rvallee

    Fatigue outcomes following COVID-19: a systematic review and meta-analysis 2023 Poole-Wright, Chalder et al

    It's outrageous that useless studies like this keep getting funded. So far over 90% of LC studies have been completely useless, looking at the wrong things, or not really looking at anything. It basically acts like a jobs program. This pretender, Chalder, supposedly has decades of experience...
  3. rvallee

    Evaluation of Brain-Body Health in Individuals With Common Neuropsychiatric Disorders, 2023, Mosley et al

    Psychiatry finding the hard way that a human body is an organism, not a bunch of independent organs with a brain-in-a-jar working just the same as one in an actual body. The main finding seems to be that little of those deviations match any observed changes in the brain, although that may...
  4. rvallee

    Evaluation of Brain-Body Health in Individuals With Common Neuropsychiatric Disorders, 2023, Mosley et al

    Evaluation of Brain-Body Health in Individuals With Common Neuropsychiatric Disorders https://jamanetwork.com/journals/jamapsychiatry/fullarticle/2804355?guestAccessKey=1b2a2eb2-ffa6-4ec1-b702-fc9b8eb4c840 JAMA Psychiatry. Published online April 26, 2023. doi:10.1001/jamapsychiatry.2023.0791...
  5. rvallee

    Molecular mechanisms of stress-induced reactivation in mumps virus condensates, 2023, Xiaojie Zhang et al

    Maybe it's only part of the answer, but the intensity with which latent infections have been denied and dismissed, despite being common and well-documented, as a potential source of illness, and contrasting with the conditions where 1) viral particles are as small compared to a human body as a...
  6. rvallee

    Molecular mechanisms of stress-induced reactivation in mumps virus condensates, 2023, Xiaojie Zhang et al

    I wanted to know what specifically they mean by stress (definitely not psychosocial stress) and unless I missed something it's oxidative stress that promotes viral replication: Our culture model recapitulated hallmarks of persistent benign infection: cells did not exhibit stress as indicated by...
  7. rvallee

    Long Covid in the media and social media 2023

    Long story short: in response to the Stanford clinic removing masks in their LC clinics, a few MDs started openly mocking Long Covid on Twitter. One of them is famously-wrong-about-everything Prasad, a prominent COVID maximizer. Now, we have been openly mocked and bullied this way, and worse...
  8. rvallee

    Public urged to wear face masks again as new Covid sub-variant sweeps Britain

    A mixed reaction, but this was no cause for celebration. Many happy to do the wrong thing. Others unhappy. Doesn't really inspire any confidence given the basis is BS. It shows mass confusion about basic facts.
  9. rvallee

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    The only explanation that makes sense here, that justifies doing this, is that it's a major breakthrough and it would have less impact being attacked as "not yet peer-reviewed", since those attacks would have months to go around before the truth comes out. Otherwise it'd be extremely...
  10. rvallee

    Comparing Physician and Artificial Intelligence Chatbot Responses to Patient Questions Posted to a Public Social Media Forum, 2023, Ayers et al.

    Gonna have to think a lot bigger than if they don't want to be left behind, though. Doing the same thing is not how to make best use of transformative technology, they need a complete paradigm shift that will mostly leave human interaction as the exception, time is by far the biggest factor in...
  11. rvallee

    Comparing Physician and Artificial Intelligence Chatbot Responses to Patient Questions Posted to a Public Social Media Forum, 2023, Ayers et al.

    Yup :) Frankly this mostly supports the fact that the issues are systemic. If MDs had more time, I'm sure they would do a lot better at it. But when we try to change the system, it's always MDs who rage against any such change. So it's hard not to blame physicians for this, when they are in...
  12. rvallee

    Long Covid in the media and social media 2023

    I wish I could say this is surprising, but at this point it seems almost expected. Not the only instance of this I've seen, the idea that people need to be regularly infected in order to train their immune system seems to have been bought by the medical profession hook, like, sinker, fisher and...
  13. rvallee

    Protocol Effectiveness and health benefits of a nutritional, chronobiological and physical exercise primary care intervention in FM and CFS 2023 Carrasco-Quero

    Completely unserious. What would these people of doing 500 trials of hydroxychloroquine for COVID? Then 500 more? They actually frame this as novel. Literally the same old, somehow always new. Like it's basically dementia research, except it's not research on dementia so much as simulating what...
  14. rvallee

    Do diagnostic criteria for ME matter to patient experience with services and interventions?, 2023, Kielland et al

    It's very likely that this BPS ideology is the absolute worst model ever to be invented and put into practice by professionals. I don't think there's anything even 1% as bad as this anywhere, it's simply staggering in how absolutely awful it is, and the fact that the response from the medical...
  15. rvallee

    Do diagnostic criteria for ME matter to patient experience with services and interventions?, 2023, Kielland et al

    A mere slogan, words on a wall. Nothing more, unfortunately. A good idea turned upside down by capricious exemptions.
  16. rvallee

    Public urged to wear face masks again as new Covid sub-variant sweeps Britain

    At this point, the minimizing disinformation out of public health institutions is more likely to lead to people to defy those rules. At least in the population that doesn't see themselves as vulnerable. As in we may be seeing stuff like flash crowds basically breathing into each others' faces...
  17. rvallee

    Learning from long COVID: integrated care for multiple long-term conditions 2023 van der Feltz-Cornelis et al

    The LC clinics are still widely known to be a complete joke, useless for the most part, ignorant and harmful at worst. And they're freaking praising themselves over it. What a complete joke this profession can be at times. Just completely detached from reality. And they're even showing in...
  18. rvallee

    Post-COVID—More than chronic fatigue? 2023 Ulf Seifart

    When you have no idea what ME/CFS but decide to somehow compare to, literally using the same arguments we've always pointed out, even basically describing ME as it is commonly described, but not being aware since they're anchored on an invalid definition of "just chronic fatigue". Don't you...
  19. rvallee

    News from Canada

    Haven't really dug for details, but: A $6M grant from Brain Canada will fund the creation of a new Open Science patient registry, to share data with researchers around the world and let patients see how their data is used to develop new treatments for neurological disorders.  ...
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