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  1. rvallee

    Long Covid in the media and social media 2023

    It really is a combination of several factors, but the shocking thing is that almost all of those factors are a choice, made deliberately and confidently. They all stem from the same root, though: the biopsychosocial ideology. Which IMO is more of political ideology than anything else, is...
  2. rvallee

    Uplifts and hassles are related to worsening in chronic fatigue syndrome A prospective study, 2023, Friedberg et al

    Oh wow not kidding, the NIH did fund this garbage: Every BPS solution takes the form of some recreational time off: enjoy pictures of animals, take a walk, hang out with friends, finger paint, sing. It's all kindergarten recess stuff, and somehow they're still not sure if it's useful after...
  3. rvallee

    Uplifts and hassles are related to worsening in chronic fatigue syndrome A prospective study, 2023, Friedberg et al

    In a sense this is basically discovering about PEM and fluctuating, but being completely unable to process it and attributing it to some preferred belief instead. This is the essence of what the answer to life being 42: if you ask the wrong questions, you will get equally wrong answers. None of...
  4. rvallee

    Uplifts and hassles are related to worsening in chronic fatigue syndrome A prospective study, 2023, Friedberg et al

    This is basically just redefining disability as bothersome. Which is the same as not understanding disability, as there's nothing hard about it. Same old tripe, completely devoid of any intelligence or humanity. All on the basis of "we don't believe you", over a century of the same tripe in...
  5. rvallee

    ELUCIDate Study: Bristol University

    This dude. This dude is part of a research team studying Long Covid in kids. Here he whines that there should be no warnings about LC, especially from public health organizations, and instead they should be speak up about recovery and hope. Absurd. This is like having security administrator turn...
  6. rvallee

    Thesis Exploring overcontrolled personality traits in individuals with fibromyalgia and chronic fatigue syndrome, 2023, Horton

    I'm not sure if it would read any different if you just swapped most of the terms here with codes. Just numbers, like ASCII codes. Swap "fatigue" for 7837 and anxiety for 0034, or whatever. They don't seem to actually mean anything, are simply placeholders for ideas that have no depth...
  7. rvallee

    UK: Aberdeen Uni: Major new study aims to increase understanding of fatigue

    I don't think I've ever seen a coherent explanation of what that even means. It doesn't even make any damn sense.
  8. rvallee

    USA: News from Solve ME

    This is seriously so disturbing it could derail SolveME's future efforts, wondering how the hell did they think this is a good idea and if they have their priorities set straight. Honestly between this and deciding to do a GET trial, I'm not entirely sure which would be the most absurd. It's...
  9. rvallee

    Dr Karl Morten - UK researcher based at Oxford University

    Normally that's what universities are for. And cheap graduate students. Especially cheap graduate students. They usually do that early research, then continue it for the rest of their academic career. The whole system fails when dealing with a subject so taboo that no one can study it this way...
  10. rvallee

    Long Covid in the media and social media 2023

    Not bothering to find the article, doubtful it's any more substantial than this. But... tiredness, fatigue, so mysterious. So misleading. Must be a huge coincidence with this massive rise in chronic illness and disabled. Fortunately, this is just tiredness, not illness. Or whatever. Clearly must...
  11. rvallee

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Oh they could wait a lot longer than that. The pace of science and technology will change this entirely, but I have zero doubt that if technology mostly stagnated overall, leaving medical science at about the stage we are in right now, they could go on failing for 500 years without any progress...
  12. rvallee

    Research on pacing as treatment for ME/CFS. Discussion of how to do it.

    I agree that it makes sense to know better about this, but nothing done in the last century suggests this is something medicine is capable of. They can do studies, but those never tell us anything about anything. More concerning is that most of the hands that would grab this would misuse it...
  13. rvallee

    The bidirectional effect of stress and functionality in MS and the interaction role of anxiety, coping and social support 2023 Moss-Morris et al

    Sounds like psychoanalysis, but written? They claim to confirm scientific hypotheses from simply reading some people's thoughts. The fact that stuff like that gets through peer review suggests that peer review is mostly a formality that applies conformity of thought more than anything.
  14. rvallee

    The bidirectional effect of stress and functionality in MS and the interaction role of anxiety, coping and social support 2023 Moss-Morris et al

    This one annoyed me just enough to look it up and it just means using a daily diary. So I guess they think they can do that, confirm hypotheses just from reading daily diaries. Which actually makes it all even more nonsense than it already seemed to be. For sure this discipline loves to use...
  15. rvallee

    Research on pacing as treatment for ME/CFS. Discussion of how to do it.

    You don't. Pacing isn't a treatment anymore than avoiding smoke-filled rooms is treatment for asthma. Anyone who thinks this is valid doesn't understand pacing or the context in which it's used.
  16. rvallee

    The bidirectional effect of stress and functionality in MS and the interaction role of anxiety, coping and social support 2023 Moss-Morris et al

    Honestly, that's always my starting point with BPS stuff and it hasn't failed me once so far. An entire discipline based on hot air, and even then, don't expect to find any actual hot air, just the idea of something like it. It's Meyers-Briggs medicine at best, and it's all downhill from there.
  17. rvallee

    The bidirectional effect of stress and functionality in MS and the interaction role of anxiety, coping and social support 2023 Moss-Morris et al

    TL;DR: send truckloads of money to us, we'll find ways to waste all of it. I'm not entirely sure how different this is from indulgences. At this point they should just take bribes and do a sing-along about how giving the money is the cure. Who even cares at this point? Invalid is invalid...
  18. rvallee

    Risk of Parkinson Disease Among Service Members at Marine Corps Base Camp Lejeune, 2023, Stroupe et al

    Adding to this, didn't keep the article so lost the source, but trichloroethylene used to be quite common some decades ago, was even used to decaffeinate coffee. It's present in many water sources as a result. It's still used, though far less than before.
  19. rvallee

    Cross-reactive EBNA1 immunity targets alpha-crystallin B and is associated with multiple sclerosis, 2023, OLIVIA G. THOMAS et al

    Can homology be a good explanation for autoimmunity? Seems fitting. An immune response creates antigens that interfere with other proteins/molecules because they fit in the same receptors. Especially if B cells stick around and continue releasing the antigens. Or if a pathogen remains present...
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