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    Review Migraine and functional neurological disorder (FND)—a review of comorbidity and potential overlap 2025 Stone et al

    I once met a doctor that really seemed to think migraines are some functional/hysteria kind of problem. Wouldn't give me medication and proceeded to spend 30 minutes talking to me about how he also pushed trough his pain in the military trainings, and that it was the end of my life if I "Decide...
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    Anyone experience bradypnea with ME/CFS?

    I have suspected that before, but mine seems so extreme!
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    Anyone experience bradypnea with ME/CFS?

    With trace, do you mean the graph? That is from when I am awake. My oxygen graphs do not show the obstructive sleep apnea kind of up and down either, as it shows decreased oxygen for periods up to half an hour and then I seem to wake up/start moving around. I am definitely mentioning this to my...
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    Anyone experience bradypnea with ME/CFS?

    I naturally have between 6-10 breaths a minute when just laying down on my phone. I am pretty sure it can get even slower when I am asleep or close to falling asleep. It. My smartwatch has been complaining about my low oxygen levels, at night it records as low as 78 sometimes. I prefer to...
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    DecodeME in the media

    Finally!
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    News From Jarred Younger / Neuroinflammation, Pain, and Fatigue Laboratory at UAB, From Aug 2020

    Problems with the brain just doesn't have to mean there is *brain damage*. Obviously there is something going on in there.
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    News From Jarred Younger / Neuroinflammation, Pain, and Fatigue Laboratory at UAB, From Aug 2020

    I would imagine spontaneous recovery/improvement in cognitive function that some people report would not be possible
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    Preprint Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, DecodeMe Collaboration

    Does not surprise me, it really seems like a big part of me/cfs. Its one of my most disabling symptoms.
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    Criticisms of DecodeME in the media - and responses to the criticisms

    That's why I think the problem of how ME/CFS has been treated lies way deeper then not acknowledging the biomedical nature. It is more about the fact that anything subjective isn't taken serious, and that we are very far away from psychological conditions actually being seen. Being depressed...
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    Genetics: RABGAP1L

    I got sick quite a lot before ME/CFS, lots of ear infections and got the shingles 3times really badly. Although I suspect I had ME/CFS very mildly for a few years back then as well, possibly after the shingles, I don't remember. I don't think anything changed, I just go outside less and won't...
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    DecodeME in the media

    Yes!
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    DecodeME in the media

    I could probably help a bit on translating it, if thats needed.
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    Criticisms of DecodeME in the media - and responses to the criticisms

    I have been responding to people misunderstanding it on facebook and reddit all day, I wish this was explained more clearly.
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    DecodeME in the media

    https://www.nieuwsblad.be/buitenland/wetenschappelijke-studie-toont-link-tussen-genen-en-chronisch-vermoeidheidssyndroom/82466639.html?utm_source=hyperlink&utm_medium=referral&utm_campaign=share belgium too!
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    Genetics: OLFM4

    I'm in general just confused what anti-inflammatory is supposed to mean, but I suppose I"m understanding quite little of this..
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    DecodeME in the media

    I feel like it may be because it's still a preprint
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    DecodeME blog: X marks the spot where ME/CFS biology can be discovered

    Not an expert, but I can try my best to explain. Some of the genes are just slightly less or more common in me/cfs, and thus tell us something about what precesses are involved in developing me/cfs or staying ill. But none of them just straight up cause me/cfs, or guarantee someone to either...
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    Preprint Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, DecodeMe Collaboration

    I wonder if it would depend on whether ME/CFS is going to be 1 disease or several?
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    Preprint Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, DecodeMe Collaboration

    I am hoping future research will more frequently follow proper criteria, otherwise many studies will continue to be basically useless.. especially with long covid!
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    Preprint Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, DecodeMe Collaboration

    I think that would be very helpful for looking into it further, maybe if more research happens that could be discussed in those threads as well (if its directly related)?
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