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A lot of people report feeling better during the delay period. Slight PEM -> forcing activity -> temporary improvement in symptoms -> full PEM next day

I think you are talking about a different LC data tracking study, this one has questionnaires for PEM, FUNCAP, quality of life etc. Edit: although obviously its all pretty subjective. But they did capture my abilities well despite not knowing much about pacing etc at the start (while FUNCAP...

I think the simple answer is just yes. But it needs to be set up well, and follow people for (imo) at LEAST 10 years. Personally I have been filling in questionnaires for 1+ year for the dutch postcovid research network (https://www.postcovidonderzoek.nl/), I assume similar things have been...

During these periods my steps tend to double (1200-1500 to 2500-3000). Not nearly levels of healthy people, and I still have me/cfs symptoms, just can manage to do a lot more and especially my brainfog is way less.

People are organizing a demonstration to make health insurances in the Netherlands pay for the treatment. It is unclear to me whether the company itself is behind this, very little information available about the organization that's organizing it. edit: their website...

I feel like PEM needs to be better described. "Symptom exacerbation that lasts for one or several days, often with a delay after initial exertion", is not detailed at all, a BUNCH of people with chronic illness experience that. Its when someone described a clear, sudden onset (especially after...

Makes me incredibly sad to read, but I am grateful we have someone like Anil to point it out.. Couldn't bear to read it all, truly makes me feel like the Netherlands just cannot make any progress. Just the same things, same mistakes over and over.

The treatment costs almost 4000 euros a month, and it sounds like (rumors) that the participants of the study might have paid this themselves.

https://www.nrc.nl/nieuws/2025/12/09/verdovingsmiddel-lidocaine-helpt-tegen-postcovid-a4914849?utm_source=clipboard&utm_medium=clipboard&utm_campaign=share&utm_term=share-modal Lidocaine anesthetic helps against post-covid

When I was doing my CBT & GET / pain rehabilitation thing ("just ignore pain and fatigue, because it isn't harmful. But that doesn't mean your experience is fake!!!!! Trust."), I started reading the arguments against it because I felt so horrible. But if you are told, that giving up and that...

I definitely experience that as well (edit: I could have written your description myself, so similar), although not as often as the flu-like symptoms. I always call it the "wired but tired", and often my HR is extremely low (40 to 65bpm) but beating strongly and often feels like I have...

this should be "clinics"

I think a lot of the separate symptoms can feel like "fatigue", but as I have learned more about my symptoms, the more I see them as separate symptoms. If someone had asked this question 3 years ago, I would have said I only have fatigue and some pain. OI makes me feel out of breath, like im...

All BPS doctors I have met seem to think all my symptoms are just fatigue that doesn't resolve from rest. So if it doesn't resolve, they seem to think it also doesn't get worse. This is obviously not correct, but it makes sense to me, that with that bit of information GET would be the solution...

This is very interesting! Even in my worst crash, I mostly felt a ton of muscle pain and a horrible headache. But I also haven't been fully bedbound for more thab 24 hours, so I can see it be a severity thing. I clearly remember genuinely thinking I was going to get the flu every week before I...

I never understood what people exactly mean with "poisened". My PEM and general symptoms are very much a mix of feeling like I am just about getting the flu and a migraine with some orthostatic problems randomly mixed in. Maybe I just don't experience it?

https://vu.nl/nl/nieuws/2025/observationele-studie-naar-lidocainebehandeling-tegen-long-covid A study of 103 patients showed that an innovative lidocaine-based treatment reduced symptoms of Long COVID. 80% of participants reported an improvement in quality of life. Doctors from Excellent Care...

I have that exact type of leg pain! It can get quite severe for me, leaving me unable to stand for more than a few seconds on some days.

https://www.hetpaisprotest.nl/livestream the livestream has fully started, more than thousand people are currently watching

Some more articles https://archive.ph/VY3D7 These Amsterdammers are #NietHersteld and demand to be seen by politicians: 'The disease feels like a prison' Long-COVID youth sound the alarm: "Our lives are at a standstill" https://npo.nl/start/serie/kassa/seizoen-21_1/kassa_754/afspelen 23...