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  1. Remain in Light

    Complement activation in a model of chronic fatigue syndrome, 2003, Sorensen et al

    Invariably my PEM starts at 4 hours. Sore throat, cold and sleepy. Usually I perk up after a couple of hours but I have sore weak muscles the next day. It is like 2 different aspects in the same process
  2. Remain in Light

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I know. Another BBC article misrepresenting bad news as good. Presumably they just repeat what spin sheet they are given. At the end of the article the BBC's Head of Statistics gives a token bit of qualification to prove he read the ONS study. I read it last night. It had the results of 3...
  3. Remain in Light

    UK: Dr Sarah Myhill

    Firstly I don't have a lot of truck with some of Dr Myhill's views especially around vaccinations. However when I first got ill and worked out by myself it was ME and then saw the paucity ridiculousness of NHS advice I turned to Dr Myhill for what to do. She has a high online presence, maybe...
  4. Remain in Light

    Well-known, famous people with Covid-19 and Long Covid

    https://www.thescottishsun.co.uk/news/7321680/matt-hancocks-martha-battling-long-covid/. Martha Hancock. I guess she has had her time in the limelight, no matter how unhappy it was. I feel so sorry for her for many reasons, but long covid that's harsh . Meanwhile her much admired husband, (if...
  5. Remain in Light

    2021: Communications between NICE and the S4ME management committee about the paused NICE ME/CFS guideline

    Much appreciated. Thanks all those involved for their work and determination.
  6. Remain in Light

    Flawed data led to findings of a connection between time spent on devices and mental health problems, Sewall, 2021

    As an experienced parent of teenagers I know what is right for them and this kind of objective meddling (probably funded by the games industry) threatens to undermine my authority and the family unit;)
  7. Remain in Light

    Royal London Hospital for Integrated Medicine: Physiotherapy for Chronic Fatigue (CFS), Aug 5 2021

    This is almost a koan. Is it better to have a clinic run by someone informed but wrong, or by someone who hasn't a clue. To those of us who have experienced all the dogma and empathy of the Spanish Inquisition at these CFS clinics it will feel sweet victory, no matter how pyhrric to have them...
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