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A very long nightmare. I do not know why they keep this up. It is just watered down rehash that has no evidence base. The past comment of racgp being invested in nice guideline has clearly gone out the window. Does anyone know if this is a temporary measure for a clinical evidence update coming...

“I've had ME for 11 years and have almost constant flu-like symptoms. I have a question about the immune system. So, like many, my bloodwork is normal. Normal WBC, CRP and ESR are close to zero, everything else normal. I don't believe I have any persistent virus that my body is trying to fight...

I had Suvorexant (Australia) which is a similar orexin antagonist and unfortunately it did not do anything for sleep. Hopefully you have a better outcome with Daridorexant.

Good point. The studies that I can remember of Australians with me/cfs point to 1/500 (50,000) incidence. It worries me the last few years that emerge keep quoting that 250,000 figure.

So depressing that Dr Norman Swan keeps parroting Andrew Lloyd’s BS. Does not even have the decency to read the Pace trial himself and look at the raw data. He has interviewed Sharpe, White Wessely and Lloyd multiple times over the years and never had a patient or specialist on who deals with...

I find Andrew Lloyd a completely perplexing person with his views on me/cfs. He is ok with putting his name on this study but has a thoroughly contrasting view in the interview below when explaining about psychosocial or vulnerability not being factors in the developments of me/cfs. He is...

I saw that yesterday and my heart sunk. Dr. Schloeffel sells homeopathy at his clinic and dabbles in Lyme disease based on overseas blood tests. His methods are complete pseudoscience. Anne wilson compared me/cfs with adrenal fatigue in her first email as ceo. I fear all the good work done by Dr...

The only specialist in Melbourne I think he could be referring to is dr Michael Oldmeadow at the Alfred hospital. He is a consultant physician. Not sure what treatment he is talking about but could be narcolepsy stimulant drugs that maybe led to a crash. Just speculating.

Hi not a problem. I do not know if it is funded or not yet but with blinding and actometres they will need government funding.

Data in my case was stopped at 4 months instead of 5 because of a batch of ingredients being lightly different would legally causes trouble for the trial. The cfq scores where calculated at 4 months. Others had completed the 5 months but with a corrupted formulation for the 5th month. Hope this...

Just some more information on that study. I was in it. The authors fully understand the current situation me cfs is in and that there is no treatment. The study was run with no money at all but as a side project. The main psychiatrist does not view the illness as psychiatric or as a result of...