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I have severe ME/CFS and nothing else. My white blood cells count is always in the level BELOW the normal range and my Dr has a worried look when he looks at the screen. No one has really been able to say what this means if anything. Not sure if this would be immunocompromised.

New comment on paper from Brett A Lindbury. I think this a professor at ANU. https://www.qeios.com/read/U6CNJY

Hi Utsikt. You are correct but usually the people that recover have a far more contested diagnosis. Probably ongoing fatigue without post exertional malaise and sleep disturbance. Not saying it isn’t possible to recover with a barn door ME/CFS case but far less likely. A biomarker and some data...

Oh god. Will this stuff ever end.

I have been a bit critical of Emerge Australia over the years but their statement about the problems with the SBS Insight program was spot on.

I would sign up to that kind of research in a second if it was going on in Australia. Obviously that kind of therapy could do some harm but hopefully the Qeios article will start some deep conversations and get the ball rolling. Thanks.

I would describe it as an awareness of feeling in the muscles. A ‘lactic’ type feeling with a bit of pain but mainly a heavy-ness fatigue feeling. They have done muscle biopsies in Australia on us people but no lactic acid was found during a crash event.

Sadly on Amazon and eBay fake car parts that look identical are sold as factory parts. The worrying thing is that there is not really any tighter restrictions for supplements for human consumption.

No no I was not criticising - I think the words you used were right. I feel exactly the same. Stuffed but happier today.

Bloody oath. That is an understatement.

Sort of like an Alfa Romeo….. a bit late but probably worth it.

I don’t get what was the point of the whole program. It was totally devoid of science and put people into a group of probably unrelated disorders. It had a whiff of Netflix Afflicted about it. The person who recovered from rheumatoid and ‘chronic fatigue’ through ‘holistic’ treatment and an...

I still cannot grasp Dr. Alastair Miller’s motivations in all of this. Puzzling.

I may have missed something but didn’t Fiona Symington state she had EDS, Fibromyalgia and Chronic Pain Syndrome. Paul Garner had a post infective fatigue state allegedly that stopped within 18 months? All a bit irrelevant to ME/CFS I think. Hopefully the reader would know that but still a...

Exactly.

A portable evaporative cooler fan with ice blocks in it may help. Maybe a Black and Decker on Amazon.

Being in Melbourne heat in summer can easily reach 40 degrees c for a couple of days in a row. For me/cfs this is pretty tortuous so the best thing I ever invested in was a split system air conditioner. It is so quiet my issues with sound are not a problem. If you don’t own the building this can...

I wonder if Andrew Lloyd, Vegard Wyller and Alistair Miller will be as outraged this time and write a letter to the BMJ protesting any medical intervention for ME/CFS are an affront to their business model.

So sorry Hutan. I have read all your stuff on DR Arroll and his lightening process work. Quite unbelievable that your GP sent this through to you. Hope you can find a new GP.

Good. Wish it worked for me. It is actually not allowed in Australia to be prescribed anymore unless under a ADHD diagnosis or being prescribed by a sleeping disorders specialist. Pretty ridiculous if it actually helps people.