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    Coping with heat

    No but it is not a bad idea at all.
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    Coping with heat

    Oh dear.
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    Multi-omics identifies lipid accumulation in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome cell lines: a case-control study, 2026, Missailidis et

    Same here. My triglycerides are super high and have a low 24 bmi and elevated cholesterol.
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    Coping with heat

    It was 43.5 degrees where I am situated in Australia yesterday. Today is more sensible temp but tomorrow will be 42. The difficult thing with me/cfs is that the air conditioners start to give up over 40 degrees and you are left to douse ones self in water and try and sleep. Good luck to anyone...
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    Review [+ Case Report] [POT] With [CF] After HPV Vaccination as Part of the “Autoimmune/Auto-inflammatory Syndrome Induced by Adjuvants”, 2014, Tomljenovic+

    I had the worst crash ever 5 days after my 3rd Pfizer covid vaccine. This could be intriguing if anyone could ever work out a mechanism from this that fits into that timeframe.
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    The Born Free Protocol

    THAT ABOVE. I have been down the Born Free road a few times over 20 years and it DOES NOT WORK. It is a similar thing repackaged every 5 years. If you are a medico in some parts of the world and push this stuff without evidence you get your licence pulled.
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    The Born Free Protocol

    I would say the reddit feed is pretty negative for Joshua and the Born Free protocol. As it goes longer it looks like 50% see it for what it is. There is a bit of Howard Schubiner type language in the video which is a worry.
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    The Born Free Protocol

    It is amazing this person has gained any traction at all. He is a dude that wears a lab coat and ‘consults’ in endocrinology. Fine if no damage was done but people that have a profile in the community and are recommending the protocol should know better. It was a bit of a heart sink moment when...
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    The FHJ debate: The NHS is failing to provide services for patients with symptom-based disorders, 2025, Burton et al

    Quite a problem in Australia regarding fires and arsonists working in the fire department. I think your analogy about certain BPS folks working in ‘symptom based disorders’ is pretty accurate.
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    Whitney Dafoe Updates

    I read the whole reddit page and found it pretty troubling. Great that Whitney is able to engage but some of the reasoning is a bit weird.
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    The FHJ debate: The NHS is failing to provide services for patients with symptom-based disorders, 2025, Burton et al

    When they keep changing the name every 2-3 years they are completely stuffed. Medically unexplained symptoms, symptom based disorders, central sensitisation syndrome, FND ( I get some FND is real). Including IBS, POTS and migraine as the same disorder is silliness. A notorious physician started...
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    NYC-based ME/CFS doctors recs? (excluding Susan Levine)

    You are on the ball DHagen with you comments but I have been on this forum since the start and have not really got that view about experimenting with substances. There is just a lack of evidence and some Dr are pushing stuff at great cost. I think some of the substances you have mentioned in the...
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    NYC-based ME/CFS doctors recs? (excluding Susan Levine)

    There are not really good specialist or Gp’s that deal with the disorder primarily these days. They would be burned out after a year because they would be booked out solid for over a year. They used to exist and some of them were outstanding. These days if you are lucky you will be referred on...
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    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    Some of the ways people have been treated is truely appalling. I sort of wonder if I have had a lucky run with doctors or because I look like I am infective when at my worst and that I was always believed. Hopefully it is not because I am male. The biopsychosocial doctors that speak publicly in...
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    Comparable Immune Alterations and Inflammatory Signatures in ME/CFS and Long COVID, 2025, Petrov et al

    That is not my experience. It is worse when in PEM but otherwise the flu like feeling is always there for me since 1999. Only dead sleep is a break. Obviously.
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    Why some people with ME/CFS react more strongly to medications

    Ok with antibiotics. Feel like death on CNS Stimulants. Onions and garlic make me feel real bad. First generation Antihistamines death again. And unbelievably - feel bad on Vegemite (Australian). A lot of drugs do make me feel worse where normal people don’t have that so maybe it is a disease...
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    Why some people with ME/CFS react more strongly to medications

    I just felt twice as deplorable on those two substances where I could tolerate them normally before I had me/CFS. I go really pale on them which is really weird. One popular antihistamine/sedative injection for a migraine caused an anaphylactic reaction which is probably a seperate thing.
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    Why some people with ME/CFS react more strongly to medications

    Very big problem for me in particular alcohol and antihistamines. I have thought about this a lot and cannot make much sense of it scientifically but I do think there is something there to be worked out. Not sure if a subset of patients is more prone or just a disease severity thing. I know...
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    Trazodone for Insomnia

    Interested to hear about that. I wonder what percentage of people on S4me take something to achieve sleep at all. Managing sleep and medications when sleep cannot be attained naturally is very challenging.
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Sadly it is quite common with brain training. It is a grift from some highly credentialed and mostly low/no credentialed people that goes all the way back to back pain with Sarno. I got caught up with one years ago but didn’t lose much. I don’t think many will be convinced by Garner and his...
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