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  1. Tree

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Wow ‘For Alex Ballinger, who was elected as Labour MP for Halesowen last year, his party is about "increasing opportunities for the most vulnerable people in society". "We're about improving life outcomes and being ambitious for those people who maybe need a bit more encouragement," he said...
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    Coping with heat

    Is it the age of the single glazing, why they say so? In my country they recommend heat-resisting foil for single glazing.
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    News from Australia

    Media is full of bias these days and less about thorough research of facts. I have thought about starting our own press agency. But I think I am too unwell.
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    Coping with heat

    Ah okay is it old single glazing or double glazing?
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    Coping with heat

    Depends on the type of glazing. High efficiency glazing can crack. There are special foils these days for high efficiency glazing, that can be put on the inside. But make sure the foil you use is suited to your type of glazing. Someone I know had old style double glazing without issues and it...
  6. Tree

    Maeve Boothby O'Neill - articles about her life, death and inquest

    In my view we need to copy the quack’s media campaign. Only their side is being broadcasted everywhere. That’s why the population at large (most drs included) have no idea of the true nature of ME.
  7. Tree

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    It seems the whole western political world seems obsessed with getting disabled people to work, but also are unwilling to improve healthcare or research to give us opportunities to do so. If I were able to work I would do so because my life was a thousand percent easier when I was working.
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    Coping with heat

    Haha love Brenda
  9. Tree

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Shame on your MP. At least he/she could have responded.
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    Ivabradine, adjusting

    Is there a known adjustment period?
  11. Tree

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    The responses on the tweet said that some people were not awarded PIP. Some other people said that they were warned that the chances of getting PIP were low, and so they did not apply.
  12. Tree

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Here are the documents she got from the FOI. Here is the link to the tweet. Maybe that gives more context. Hope this helps.
  13. Tree

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    The second paragraph, do you mean the link to the survey or the added FOI documents? Or do you mean something else?
  14. Tree

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Tessa Munt’s tweet says: ‘#pwme please help me with a brief anon survey. DWP’s response to my FOI request (ed: she included two documents in the tweet) implied that v few #pwme access PIP DLA and many will lose this with the cuts. To act I’d first like to understand, what’s up, focussing on...
  15. Tree

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Saw an appeal of MP Tessa Munt to fill out a questionnaire on experiences of access to PIP. Edit: This is specifically for ME patients The link to the questionnaire: https://docs.google.com/forms/d/e/1FAIpQLSeuH5J_D2T97iuxSYoyBPPIOzCoZ6hhB1EjhA50ylMIl1j4jw/viewform
  16. Tree

    Letter about ME/CFS and disability benefits in Sunday Times

    Thank you Robert for doing this. Great letter and I am sure a lot of us can relate.
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    Sweden: termination of the contract for specialist medical care for ME in Stockholm, including the Bragée ME Center, 2023

    So the care for ME patients in Sweden has been reduced, if I understand correctly? And upon criticism of the Swedish patient organisation, the Health Authority says that services will be available through primary care? Seems like a huge deterioration of services.
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    Sweden: termination of the contract for specialist medical care for ME in Stockholm, including the Bragée ME Center, 2023

    Would it be possible to give a a short english summary or a link to an english version?
  19. Tree

    What are the top replicated ME/CFS findings?

    Great resource, thank you
  20. Tree

    Coping with heat

    Had to google chest freezer, because could not imagine a big-boobed freezer. These are not very efficient. I have a simple fridge freezer with drawers. Also a high efficiency one. So it will probably excude a little bit of warmth but very little. My tv gives off more heat. But as @Kitty said...
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