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https://doi.org/10.1007/s00296-012-2538-6 https://doi.org/10.1177/0004563213506413 doi:10.1093/rheumatology/40.7.743 PMID: 17543146 https://doi.org/10.1093/rheumatology/keab146 https://doi.org/10.1177/1099800409348328 Interesting to note that Goebel paper says no systemic change in cytokines...

I don't have ME. I have chronic widespread pain, but I have PEM(that's why I'm here lol) , that is the progressive worsening of my pain with minimal effort among other symptoms. Another Wierd thing about me is my pain is mainly non gi abdominal pain, and while I do get fatigue it comes and goes...

Very in depth explanation thank you. One more thing:what would the motivation for hype be? Why would somebody draw attention to themselves unless they think they've really found something? After all, more attention leads to more scrutiny? The hallmarks of hype, unless there was monetary gain, I...

7 in Shak, you mistake me. I mean these 2 studies. Total enrolment combined will be 220. That'll be pretty big!!! One is done enrolling the other seems yet to finish enrol. Confusing though one is Phase 2 one is Phase 4! https://clinicaltrials.gov/ct2/show/NCT04270877...

They're not similar? Okay I was under the impression they were, because if say 50% of fibromyalgia patients have SFN, why were they diagnosed with fibromyalgia? That was my logic. You're right about realism, but I want to beat this horse and flesh it out. Because that's all that can be done...

Mmm okay if anybody has a source it'd be nice. Because I've never heard this number before, only heard 70%. I remember a quote from Geneva Liptan somewhere on the Internet about 70. I looked through the Younger paper, could not find raw data. Or didn't understand it. Or looked too fast. I don't...

Regarding the staining of cells by Antibody not having a pattern and just being brighter, I have no clue if I'm being an idiot asking dumb questions bc I'm a layman, or if this is relevant. And I quote 'Additionally, new insights and the term ‘autoimmune pain’ have emerged through discovery of...

Heeeey a kiwi! So gatchaman, it would reduce IgG then immediately?

Keela this is plasma donation though, not blood donation.

Can you give me a source of the 10-15% for low dose naltrexone? From the younger studies, the number is 70%~ that have a(not necessarily effective) response. I see what you're saying now though, but I've yet to dig into the numbers. Do you know where I can find them 'The percentages of...

Wait sorry, why wouldn't donation not immediately reduce IgG, only plasma volume?

1. It is not pre print! It is published and peer reviewed! You're looking at the old paper lol. Unless you're talking about the neutrophils. 2. The donation of plasma imo seems likely it would always make you feel worse off, that's the most common side effect it'd be Wierd if somebody felt...

I don't want to preach because I am not an expert, but I please ask you to go read through the history so you can make a judgement yourself, the author Andreas Goebel started publishing about non inflammatory autoantibodies causing pain in 2016. He has now shown this phenomenon through passive...

I'm confused. This paper is not in preprint. It was published in June 2021. It's now 2023. The author suggests procedures that lower Antibody circulation may be good treatment. I was initially doubtful, because there was nothing, nada about any anecdotes, nobody with fibromyalgia has tried...

I've found an anecdote about somebody feeling better after donating plasma. This is exciting

The author in research recommendations 'Anecdotal evidence from patients with co-morbid FMS treated for their rheumatological condition with biologics including anti-cytokine agents, or B-cell therapies suggest that FMS condition may not readily respond to these therapies; independently, the...