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There was not a chance I was getting better without medical intervention, i am actually finding it difficult to go back and reflect on how ill I was as it’s so traumatising. I was actually starting to decrease before I started cyclo. I had also tried a bunch of things to no avail; aside from...

Yes - and suffered for 2.5 years.

oh and i tried many many things before from paxlvodi, to anti virals for herpres, to HBOT, to vimatins (lol) to a SGB, nothiong worked, but rapamycin did take the edge off and sent me down the autoimmune system route.

ok everyone, full remission story. tldr: I started with severe ME/CFS as Long COVID and POTS and SFN in 2022, extreme PEM that hits 24 hours after an activity and disabling brain fog. Initially CBD felt like it reduce inflammation a little so i could walk maybe 4000 steps without PEM. Worked...

roger, will try an be as descriptive as possible.

about 4-5000 before treatment now i can go up to 15-20k without PEM.

I am doing a big write up it’s on its way I just wanna put as much info in but also not have it be overwhelming for very sick people

UK

It’s a six month course where most responders in the six year data were still better. I am not being monitored by a particular group but my GP is aware and I will be doing bladder check ups once a year for the rest of my life to make sure no cancer (<5% rate in those who took as much cyclo as...

I am Half Norwegian and currently planning a trip to Bergen with my mum as she attended uni there. Will attempt to pop in and say hello!

Frankly it’s still important for people to hear about a success and remission. I can just withhold information so people can’t work out how to do it

Basically what I did is not illegal but definitely not something I want to promote. I had a doctor yes

Hi there Mods might need to help me here. I’m planning to post my ME recovery story (between 80-90% recovered still suffering myalgia and POTS but no PEM or fatigue) from the Norwegian cyclo protocol. I did not do it in Norway and I do not plan on informing people how I did it for ethical...

i am very confused by the announcement and you might be right, i will wait haha

its funded by pharma so i dont mind tbh there is a better trial in the uk thats IL6 based; https://www.phosp.org/phosp-i/

good news is they are extending the phase 2 so its not cancelled: https://www.centerwatch.com/clinical-trials/listings/NCT05918978/open-label-extension-of-efgartigimod-in-adults-with-post-covid-19-pots im not sure how or why and we dont have full details yet

damn shame, another one bites the dust. heard the normal "life changing" stories from a few on the trial, they dont know if placebo and they are contacting them. if im allowed to report on that i will let everyone know

thank you for this

out of interest what was it that made you target the b cells and not t cells, are there publications of this area of research i can look into?

right that makes sense thanks for this comprehensive write up hypothetically could someone combine ritux with dara in a short, intense snap of memory and plasma to try and reduce down that "starter antibody" and then background stuff? or even the future for antibody driven disease would be that...