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  1. JaimeS

    MYRIAD - My Resilience in Adolescence project UK

    Fundamentalists think that everything used on or for children is Satan, though. Even the Harry Potter books were said to be a gateway drug to Satan because they contained 'witches', at least here in the states. There is nothing wrong with learning about other cultures and how they do things in...
  2. JaimeS

    MYRIAD - My Resilience in Adolescence project UK

    Like everything they co-opt: strip it of anything that doesn't replicate their ideology, package it, and mark it for sale.
  3. JaimeS

    Study: Thought to be impossible - Electric messaging in Brain

    All those people who report symptoms in places with high voltage electricity are probably pretty excited about this paper!
  4. JaimeS

    Twitter activity of Professor Blanchflower

    Whoooboy someone with the #MEAction logo as their icon on Twitter engaged with Chapman and got "please don't contact me ever again, MEAction!" We contacted the original user and asked them not to use the logo (it was a well-meaning person) but too late. More fuel for the harassment meme...
  5. JaimeS

    New Symptoms- anything to be concerned about ?

    Yes! Increase in serotonin Drop in progesterone: estrogen ratio I noticed this REALLY early in my illness experience. PM me if you'd like to discuss further.
  6. JaimeS

    Trial By Error: Letters to Fiona Godlee and Nigel Hawkes

    HAHAHAOMG I remember this! https://forums.phoenixrising.me/threads/the-pace-trial-pro-it%E2%80%99s-time-to-broaden-perceptions-and-move-on-keith-petrie-john-weinman.50681/page-7#post-836932 Our no-man's-land between psychiatry and "real" medicine seems to make us even more susceptible to...
  7. JaimeS

    One-sided weakness

    I'd just like to say that it means a lot that there are four pages of people supporting me through this. Thanks, everyone. :hug:
  8. JaimeS

    One-sided weakness

    I had the sweat pressor test, an autonomic test; that just feels like prickles. It's uncomfortable but not painful: the current is low. An EMG (you're right, EEG is something else!) they zap you with higher and higher voltage to get you 'used' to the sensation. The way Mayo does it, there are...
  9. JaimeS

    One-sided weakness

    No more falls! I did get an assessment from a doctor who was more willing to try some things out. She mentioned that the muscles on one side of that left leg seem barely functional, while the other side is very tense. I've started being very mindful about walking with my foot pointed totally...
  10. JaimeS

    Facing Skepticism From Others That My Illness Isn't 'Real' - blog

    Phoenix Rising had a recent update to its display that made me briefly think I'd lost all my bookmarks. I tend to bookmark my own and others' posts when I think we've come up with some kind of clever or funny thing that will have some kind of utility later. I have started going through all of...
  11. JaimeS

    Facing Skepticism From Others That My Illness Isn't 'Real' - blog

    Oi, how could I leave that one out? For sure. A woman is supposed to always be prepared to help out, to the point that we do it without thinking. At our house party last night, my housemate (who had thrown the party) said to me three or four times, "you don't have to do that" or "thank-you...
  12. JaimeS

    Facing Skepticism From Others That My Illness Isn't 'Real' - blog

    I've explained it so often that I now have an 'elevator pitch' that explains the disease. :confused: Phrases that generally 'work' when explaining to bright laypersons: I start by naming it: myalgic encephalomyelitis, ME, ME/CFS Relapsing-remitting and neurological, a lot like MS Symptoms in a...
  13. JaimeS

    2019 Ann W. Caldwell Lecture on ME at MGH Institute of Health Professions

    I did -- apparently it's already in the works, though with the bulk of Q&A it may take awhile to transcribe!
  14. JaimeS

    Harvard's "med" and "ed" is an actual disgrace

    Given its replicability crisis, this is something of a self-own.
  15. JaimeS

    Facing Skepticism From Others That My Illness Isn't 'Real' - blog

    Screw 'em. There's a PhD thesis in the constant suggestions to women with debilitating illness being that they pretty themselves up a bit. There's something significant in that constant demand for outward-facing femininity. Can they honestly believe -- even subconsciously -- that illness is...
  16. JaimeS

    Facing Skepticism From Others That My Illness Isn't 'Real' - blog

    'Adam Ruins Everything' has a great segment on this. When people are presented with ideas that challenge their current belief system, their strategy is often if not always to double down rather than re-think their original position. The more deeply entrenched the belief, the more it is...
  17. JaimeS

    Harvard's "med" and "ed" is an actual disgrace

    That we are patients[and-also-simultaneously-not] is some real doublethink, and it leads to some intriguing feats of illogic. I've had some thinky thoughts about that. [Edit: figured out the changes in bookmarking & fixed the link!] Under the Harvard name. For $15 US.
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