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  1. JaimeS

    Golden hour (/month)

    So, here are the final results, everyone. (image attached at the bottom) First, as you can see, RBC count, hematocrit, and hemoglobin are dropping the entire time that symptoms are worsening, from 11/23 through (probably) mid-January. We didn't necessarily 'catch' those values at their lowest...
  2. JaimeS

    Golden hour (/month)

    That's possible, Inara, but I'd be cautious. I should mention that every time I go, I allow my face to be exposed VERY briefly and then wrap my head almost entirely, especially the back of the neck. I noted some mild inflammation there the first time, and have done that ever since.
  3. JaimeS

    The deadly truth about a world built for men – from stab vests to car crashes

    I've heard the antler story before, and I must say: OP is a fabulous writer. What a great opening.
  4. JaimeS

    Who said: don't bother testing patients?

    So I take from this that Wessley's papers have always kind of slid by somewhat inexplicably, even when they don't make sense. I'd say he has a lot of friends in high places, but what kind of 'friend' would let you make a mistake this public? I just have to conclude that peer review is pretty...
  5. JaimeS

    Who said: don't bother testing patients?

    From that: Sounds familiar. Sorry, maybe I'm brain fogged. Is he saying his copy of the paper had the values that were published at first? Or that his paper had the correct values?
  6. JaimeS

    Who said: don't bother testing patients?

    Mine definitely varies with weather, pressure, season. That reminds me, that Golden Hour post needs all the data added. Graphs, charts, tables... it's a veritable case study by now.
  7. JaimeS

    Intimidation of PACE critics or critics of other Psychosocial research

    Also one of the two recent interferon papers on fatigue-states. https://me-pedia.org/wiki/Anthony_Cleare
  8. JaimeS

    Who said: don't bother testing patients?

    Yes! Saaame. I've only had sensory symptoms with SEVERE overwhelm causing the crash. Like... someone playing thumping music without stopping, for hours at a time with me too physically crashed to feel I could leave for anything less than an emergency. You're right! For anyone who's...
  9. JaimeS

    Who said: don't bother testing patients?

    Valuable to try and pick apart how we got here. At least for me. :) We keep repeating a lot of the same problems. Those who don't study history and all... This might be in Ostler's Web someplace, but I left my giant copy at home when I moved to CA.
  10. JaimeS

    Who said: don't bother testing patients?

    Started as an edit to my previous post before I realized it was going to contain too much new information. This might have led to Wessley believing that the whole "starts with a flu-like illness" thing was a sham -- but it's not at all sensible. There's so much that's weird about this that it...
  11. JaimeS

    Who said: don't bother testing patients?

    From my post waaaaay back here: https://www.s4me.info/threads/who-said-dont-bother-testing-patients.6532/page-5#post-119654 Putting the link because honestly -- there's a lot just before and just after that's somewhat pertinent. But most to the point: The implicit conclusion is that Fukuda...
  12. JaimeS

    Who said: don't bother testing patients?

    There goes that theory! Thanks for your help dismantling it. :hug: My experiences with ME start with my mom's, and we were in the states and it was the 1990s! All I know about Ramsay is what I've read, much of which was also written in the 1990s or later. Now: I do still think that the two...
  13. JaimeS

    Who said: don't bother testing patients?

    We've mentioned elsewhere that SF-36 is pretty egregious this way. There are a number of questions that, were one being explicitly truthful, would ping for both depression and physical debility. I took an SF-36 or something like it when I was doing my neuropsych testing, and there were...
  14. JaimeS

    Who said: don't bother testing patients?

    Reading between the lines it seems Wessley wanted the criteria he had helped create (Fukuda) to be the most prominent one, and therefore was trying to specifically discredit the only other criteria in prominent use at the time: Ramsay. Remember, this was a talk given in 1994, the debut of the...
  15. JaimeS

    Characteristics of patients with motor functional neurological disorder in a large UK mental health service (2019) O'Connell, Wessely et al

    Just presuming the methodology is sound. That's safe, right? Yep. :thumbup: So they were already referred to psych. Though that doesn't necessarily mean they have a psychiatric disorder, it does increase their chances. Without going into it in too great a depth, it does seem like a lot of...
  16. JaimeS

    Intimidation of PACE critics or critics of other Psychosocial research

    Friendly reminder that even if that Twitter user would like to correct, they may currently be asleep or crashed.
  17. JaimeS

    Intimidation of PACE critics or critics of other Psychosocial research

    Here's a post with the full text of that article, originally posted in The Scotsman, that Wessley campaigned (successfully) to have removed. Not sure about its significance or I would've just inserted it into the MEpedia article. And Wessley's reply: Wessley did do some biomedical research...
  18. JaimeS

    Intimidation of PACE critics or critics of other Psychosocial research

    ????? :laugh::rofl::rofl::rofl::rofl::rofl: When will people learn that stuff sent over the internet is not a private communication?
  19. JaimeS

    MYRIAD - My Resilience in Adolescence project UK

    Can you explain what concerns you? Meditation isn't a harmful or esoteric practice. It's just closing your eyes and trying to focus on calm. Mindfulness is only slightly more specific than that. And it doesn't have to be linked to any specific religion or diety. [Edited for clarity!]
  20. JaimeS

    REview: Postural orthostatic tachycardia syndrome (POTS): a common but unfamiliar syndrome, 2019, van der Zalm

    That doesn't necessarily follow. Hypovolemia doesn't ONLY come from deconditioning. Also, that deconditioning does lead to hypovolemia is pretty well-established.
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