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  1. JaimeS

    Trial By Error: Kaiser Permanente Changes Course

    Couldn't have come at a better time!
  2. JaimeS

    Sense about Science UK: Become an Ask for Evidence ambassador

    It wobbled, @Andy . We have to be sensitive to these trials & tribulations.
  3. JaimeS

    Sense about Science UK: Become an Ask for Evidence ambassador

    Wessley served on Sense About Science's advisory council and later they gave him an award for bravery. What a remarkable coincidence.
  4. JaimeS

    Invisibilia: For Some Teens With Debilitating Pain, The Treatment Is More Pain

    Thanks, I was struggling to put that exact thing into words. :thumbup: Yes, I've found that to be one of the more odious aspects of the entire business. That's also why the name for hysteria keeps shifting: it's a transparent attempt to put something on the patient's chart that they won't...
  5. JaimeS

    Invisibilia: For Some Teens With Debilitating Pain, The Treatment Is More Pain

    On the contrary, I think that many of these individuals are what I would call True Believers. They just see that, in order to "show" the "truth" about how right they are, that requires a certain kind of study and a specific type of reporting. This part isn't in question to me: scientists and...
  6. JaimeS

    Invisibilia: For Some Teens With Debilitating Pain, The Treatment Is More Pain

    Sooooo brainwashing, y/y? Oh, those poor, poor doctors. This kind of reporting is absolutely sick-making.
  7. JaimeS

    How to get 'Voices from the Shadows' viewed by more people

    In the wake of the whole "treat children with chronic pain with torture" thing from NPR's Invisibilia.
  8. JaimeS

    How Chronic Illness Can Influence Suicide Risk

    Thank you. :hug: It's a good thing she liked my necklace and I liked her dog, or we never would've started talking!
  9. JaimeS

    Why are the majority of pwME rarely mentioned?

    This is a wellspring of awesome, @Andy thank you!
  10. JaimeS

    How Chronic Illness Can Influence Suicide Risk

    This is one of my strongest objections to this whole framework: that the average healthy doctor has any idea what constitutes a healthy reaction to this kind of upheaval. It's normal to grieve; it's normal to focus intently on symptoms as you try to abrogate their effects or work around them...
  11. JaimeS

    Who said: don't bother testing patients?

    Much more poignantly, and definitely more subjective/dubious, as it is from someone who knew him, but terrible if true: Man.
  12. JaimeS

    Who said: don't bother testing patients?

    A bit of a counterpoint to that "in Ramsay's day, everyone knew pwME were sick" and "the McEvedy & Beard article did not have much effect". http://worcsmegroup.weebly.com/uploads/2/9/2/4/2924979/2019.02_-_m.e._at_the_royal_free_hospital.pdf These are apparently Ramsay's own words, from 'ME...
  13. JaimeS

    Why are the majority of pwME rarely mentioned?

    Thank you @ahimsa ! I've heard people say that it's only full time and that I misunderstood -- but I'd like an outside opinion on that.
  14. JaimeS

    Evaluating Commonalities Across Medically Unexplained Symptoms (2019) - Guo et al

    Turned that around on us neatly, didn't they? And I thought we showed here that we don't actually use up "healthcare resources". Do they actually cite that, or is that within the realm of "it is known"?
  15. JaimeS

    Evaluating Commonalities Across Medically Unexplained Symptoms (2019) - Guo et al

    It's a cornerstone of pseudoscience that the data will support any conclusion you choose to draw from it.
  16. JaimeS

    Assessment of Post-Exertional Malaise (PEM) in Patients with Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). Holtzman et al. (2019)

    Anything that depends on diagnostic coding to identify ... there are a few studies like this out there. Ideally, you'd get an ME expert or two to confirm that the person had been diagnosed correctly, or you'd ask them to diagnose with your chosen research criteria. Clinical criteria are looser...
  17. JaimeS

    Evaluating Commonalities Across Medically Unexplained Symptoms (2019) - Guo et al

    Paper isn't in PubMed, at least... and, it appears, neither is he. Or if he is, he's never written about MUS before.
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