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  1. JaimeS

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Denmark has to have them shaking in their proverbial boots.
  2. JaimeS

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    I've been using the hashtag #sharegoodscience and even #CFS because that's how they're tagging their article. If people want to click on that hashtag I want them to get some good things, too.
  3. JaimeS

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    "When danger reared its ugly head/he bravely turned his tail and fled..."
  4. JaimeS

    Thoughts on AMPS—psychosomatizing?

    This is really funny, but I mean it may burn out the NS pathways that help process pain through overuse. That's the idea, anyway -- I haven't had the time to research how legitimate that may be.
  5. JaimeS

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    I have been sharing that and Julie Rehmeyer's famous one. I've also been using the hashtag #CFS, which I don't normally do, so that people who see Reuters and might click on that hashtag will see what I've posted.
  6. JaimeS

    Thoughts on AMPS—psychosomatizing?

    Oh, no. I know that we diagnose fibromyalgia via tender points, but any person with FM knows the experience of having FM goes far beyond pain. It's like moving ME or even Fukuda CFS to "fatigue, unspecified". :banghead::banghead::banghead: A few people have mentioned that desensitization...
  7. JaimeS

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Probably. But if she weren't good friends with Wessley, she probably wouldn't have gotten "the scoop" and would never have believed his side of the story if he hadn't already won her loyalty previously. We have to be careful what we label a conflict of interest, or people who once associated...
  8. JaimeS

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    You know, interventions that would suit a cloak-and-dagger novel.
  9. JaimeS

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Kelland is deliberately evading the point. She's got a long history of involvement with SMC.
  10. JaimeS

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    There is no discernment between clicks to disagree and clicks to agree. It shows up as a "popular article" and Reuters will continue to publish things like this because they drive traffic. All any news outlet cares about.
  11. JaimeS

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Exactly. I think the vast majority (all?) of us would agree that ME is not due to psychiatric issues. But if the science had been any good, I'd have had to have carefully re-examined my stance. Well said.
  12. JaimeS

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    I came here to remind ppl of this but you guys have obv been aware much longer than me on the west coast! Glad to see very, very few statements/comments on the article despite it being out for ages. And while everyone is welcome to do as they think best as individuals, I do personally think...
  13. JaimeS

    ME debate in Danish Parliament March 12 (2019)

    Yeah that was a doosy. Four days! IT'S A MIRACLE.
  14. JaimeS

    ME debate in Danish Parliament March 12 (2019)

    At least they've got approved drugs (in the US -- true in Denmark?) However, I just read some really awful things re: when Lyrica was first approved about how FM was a "made up" illness and drug companies were peddling for no reason, just to make more money. They definitely go through a lot of...
  15. JaimeS

    ME debate in Danish Parliament March 12 (2019)

    First, good to see you. Second, I imagine there was a lot of red-faced jumping up and down.
  16. JaimeS

    ME debate in Danish Parliament March 12 (2019)

    1) Exactly. 2) GOOD. No one belongs in such a Frankensteinian nonsense of a category. Might as well call us "problem patients" and be done.
  17. JaimeS

    ME debate in Danish Parliament March 12 (2019)

    OK, I heard the same, but wasn't sure how public that info was. Now that it's out there, yup... this is coming down the pike.
  18. JaimeS

    ME debate in Danish Parliament March 12 (2019)

    Let's not forget the general, community push: Unrest brought to light Karina's case to a wide audience Protests of Per Fink Karina's family, relentlessly promoting ME awareness in Denmark MillionsMissing And lots, lots of local advocates banging down doors. I would also like to remind...
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