Search results

I would say they're using the tactics they always have. They've been calling patients militant since they started studying the disease. I don't see anything new here, just an intensification of past efforts.

Also, @Sly Saint thanks for the recs for videos to mine for clips! [Edit: Does anyone else have any other suggestions?]

Just because past is prologue! I was really glad to see them producing such good work.

Regarding video, I do have some ideas and dropped them in the #MEAction Slack. Here's my idea: I'd like to interview people at the NIH conference and get an editor to splice that together. Young Investigator Workshop, too -- showing how many are ENTERING the field would be a nice counter to...

We were worried about these folks but they've been doing great work and publishing a series of useful articles over the past few years. I have been really relieved to see it. There is great news coming out of the UK too. Can anyone here take on expanding what @wigglethemouse wrote into an...

But we are made up of people. What individuals who are part of #MEAction do IS what #MEAction is doing. We also work with other, larger organizations to make things happen more swiftly or more effectively, but in the end #MEAction's 'actions' are the actions of those who work there. There is...

Thanks @andypants I really appeciate that. I know I mentioned elsewhere that it broke my heart to write it. Note the last line in my post above: People need action right now, but you're right. We also need to come together.

1) From #MEAction: https://www.meaction.net/2019/03/14/fighting-for-rigorous-science-and-accurate-reporting/ 2) Adriane has been re-working the letter here and sending it to every news outlet who have reported on this. 3) I have been on social media supporting people personally, and so have...

I swore I wouldn't jump in but I've got to on a thread like this. :) Espe has a team of UK volunteers, and I support Espe. I'll also mea culpa: I was producing an article in preparation for this, but received a bevy of conflicting advice re: wait until the article came out before doing more...

Now THAT'S astute.

Yeah, even I do 4500 on the regular, though there are other days where I move around less.

Yes -- and that's why we said in the letter that it isn't about "mental vs physical" but about "good science vs poor or misleading science". Jonathan E is right to say that it's common to frame the argument in the first way, but I argue we should not. Mental illness is embodied. It has...

Yep, same.

There are those for whom there is a constant well of rage about how they've been treated. How the government we've paid taxes to all our lives has broken all its promises to us. How their bodies won't listen anymore, but punish them for doing anything they love. But you can tell when someone...

Same, and same. His earlier work is more cautious and more sensible. Over time it gets worse... and worse... and worse. And even in the earliest stuff I've read, there was always a bit of a collegial nudge-and-a-wink in there for listeners 'in the know'. By which I mean psychosomatic...

It's this meme: :confused::woot:

#ShareBadScience ???

:hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug: A healthy person just can't understand what it takes. Thanks, you two. I'm really behind because I dared take a break during this whole snafu, but I needed it. I'm off from #MEAction this week, but I'll be keeping an eye.

https://www.meaction.net/2019/03/15/carol-head-of-smci-to-step-down/

I had that thought that trauma might be simply more common in women. But I meant that in stories about "women's illness", the trauma narrative is always pretty dominant. It seems to be a cultural bias towards a story of feminine fragility.