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  1. Ariel

    UK: Dr Sarah Myhill

    She specifically told me she was deregistering as a medical doctor following the insurance problem. That was the term used. I guess that wasn't true.
  2. Ariel

    Closed UK: DecodeME updates, was recruitment thread.

    Is it still possible to hit the target number of people providing samples? Will this affect the timeframe, or anything?
  3. Ariel

    UK: Dr Sarah Myhill

    I have been really shocked by Myhill's stance on covid. I had previously been a patient of hers (starting over a decade ago) and am aware of various problems with her approach to things, but seeing what she has said and recommended during this time just has me at a loss. It's unfortunate...
  4. Ariel

    (Recruiting) Exercise Intolerance in Post-COVID Patients, 2022, Lundberg et al

    Why would you state that you are assuming some form of exercise will help patients when your whole study is designed in order to provoke symptoms in them via exercise? There is no way I would have taken part in this study at any level of illness (am now severe, have been mild and different...
  5. Ariel

    Cancer Fatigue Scale

    "Do you feel fed-up?" I mean, come on.
  6. Ariel

    New blood diagnostic company started by Mike Snyder at Stanford

    When I was trying to give fingerprick samples it just started hurting so much that I now always refuse them as my fingers are too sensitive and painful. A blood draw is much easier and less painful if a suitable site to draw it from can be found; I also don't see why they can't use paediatric...
  7. Ariel

    New blood diagnostic company started by Mike Snyder at Stanford

    Nothing wrong with dropping out of college! Point taken about the inevitable comparison. I hope this works out for them and that there is some kind of progress or knowledge to be gained here.
  8. Ariel

    New blood diagnostic company started by Mike Snyder at Stanford

    "Theranos that works" is not inspiring confidence.
  9. Ariel

    Long COVID: major findings, mechanisms and recommendations, 2023, Davis, Topol et al

    I think it's really good that people are reading something that actually mentions ME/CFS in the context of common Long Covid sequelae.
  10. Ariel

    Building the ideal ME/CFS research institute

    Is there any hope, particularly with Long Covid, of getting an actual zillionaire on board? For example I don't see why whoever controls the Gates research money wouldn't be interested at this point. This is clearly affecting millions of people worldwide and there is an increasingly well-known...
  11. Ariel

    One possible reason the CBT/GET proponents misunderstood ME/CFS so badly

    Does it "really work" for any patients, though? Going for a series of walks? Mixes up cause and effect. Overall I agree with your point about how a grift might get started, but going for a series of walks and being given handouts "really works" for what patient subset? It strains credulity, or...
  12. Ariel

    One possible reason the CBT/GET proponents misunderstood ME/CFS so badly

    I have not seen evidence of good faith belief that these treatments work among such proponents, however. All of the behaviour around research, rewriting history, messing with definitions, and treatments of patient concerns suggests a grift. There are perhaps some who now really believe in this...
  13. Ariel

    Kara Jane Spencer, UK singer with severe ME

    Subscribed but it's at 547. +1. Will need some significant additional support to reach the goal. Also I didn't know you need 1000 subs to stream?
  14. Ariel

    Similarities between the tobacco industry and BPS/insurance interests

    What do people make of the parallel between covid/long covid denial and minimization and the tobacco lobby? Didn't they get a bunch of "scientists" and doctors to say smoking was safe and NBD? Possibly even good for you in some way? It took a long time of growing evidence that it was unsafe and...
  15. Ariel

    "We provided mental health support to about 4,000 people — using GPT-3. Here’s what happened"

    I hope the CBT people played themselves and will all someday be replaced by chatbots.
  16. Ariel

    United Kingdom: National Health Service (NHS) news

    I agree with this. NHS England generally have been quite bad throughout the pandemic anyway, and SW has been carrying on behind the scenes without any semblance of transparency whatsoever.
  17. Ariel

    United Kingdom: Science Media Centre (including Fiona Fox)

    Truly bizarre stuff; could not make it up.
  18. Ariel

    Trisha Greenhalgh on ME/CFS and Long Covid

    Leadership/power vacuum
  19. Ariel

    CFS is on the MLA list of topics that must be taught to UK medical students from 2024/2025

    Is there any way to get details or confirmation of what is actually being taught? Learning something wrong is often worse than not learning anything at all. The NICE Guidelines now existing is reassuring, but isn't it up to the medical schools how it's all framed?
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