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I really hope we are able to drop "fatigue" altogether sometime. It causes so much damage in perception by the public and medics.

Somewhat off topic but does this include the govt science advisors re: sympathy with BPS agenda? The CMO has made some fairly dubious comments about risk to kids. I am unfamiliar with the orientation of the individuals involved. Obviously there has been a decision not to speak about Long Covid...

Thanks for sharing the survey. I will do it. I had suspected covid (I have had ME/CFS for over a decade) and am now much worse than ever. Been devastating :( xx

Additionally, some physicians may consider patients recovered if they stop coming back to seek treatment whereas it's just that they are still ill and nothing can be done - or, worse, are avoiding harmful pseudo-treatments. If you don't keep coming back, you're usually assumed recovered.

BBC seems very happy to go along with this narrative. How can this ever change?

I take melatonin. It helps me sleep. It helps me fall asleep, specifically. It's been great from that point of view. I had a lot of sleep problems and melatonin was part of the solution in combination with something else, and of course improving sleep helped symptoms. I was really struggling...

Really I despair.

Does this man do anything with his life other than maintaining media relationships?

I agree with the above comment. Who is this helping? I think we can do without more euphemisms and questionable nomenclature - or strings of letters. This way of describing and grouping together the health problems of many disabled people is misleading, and seems to make us even more of a...

I am also very worried about this. Constant jabs and an immune system (probably) behaving in an unpredictable way (ME/CFS) worries me. It's one thing doing a one-off in an emergency, but... yikes.

I am 38. (I am assuming my GP put me in group 6 but I wasn't told - I have not had any communication and I am trying to speak to them, but haven't been able to). Would side effects translate to ME/CFS worsening though? I feel like people are mainly discussing transient effects, no matter how...

I've had issues with my tendons for the past 11 years, a few years after the onset of ME/CFS. At first I thought it was connected to piano playing, but I had to stop that. This also didn't explain why I got problems in my feet/other areas too eventually. My physio said it was some kind of...

I got my vaccine text but I don't know whether to get the vaccine. I'd be a lot more comfortable with the Pfizer but it seems likely to be the AZ (I am in the UK and that's what my parents got); I don't know what to do about this. I'm worried about having an ME/CFS relapse. I've already had...

The linked thread contains a bunch of people who are pointing out that she has blocked them. It's not even criticism. It's certainly clear that lack of sycophancy = abuse in the minds of some.

I have just been reading this latest development. My mind is melting. Perhaps someone could get TG in that case to confirm that promoting GET for Long Covid would be harmful?

Her responses were really good. I am genuinely moved by the poise and steadiness of so many. It gives me hope.

I was not that diplomatic in replying to related nonsense today from NA (in relation to her defence of TG); she does not seem prepared to listen or engage with anyone who is not being ingratiating, sadly. And for all of the disingenuous claims of TG and others that they have been trolled and...

I'm so glad! Honestly we could do without more harmful BS at the moment. I may watch it when feeling up to it - the whole topic is still quite upsetting. Do you think it will help people understand the relevant issues? I'm relieved! :)

Don't think I can bear to watch it having seen that first tweet. :(

I am wondering where PG is going with this, if anywhere. Is he really going to set himself up as an LP practitioner, or...? Don't know how anyone could take him remotely seriously. Is he really going to keep teaching students about how to do "evidence synthesis" after claiming to be cured from a...