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Where is the pushback from so-called long covid advocates?

I thought 23 & me was basically a data mining operation?

YAAAAY! I am happy for you! I hope you enjoy it! I miss oats! I'm no longer able to tolerate them. I can now sneak some occasionally but it's never a good idea!

Am I the only one who does not really experience "fatigue" at all? I know it's easier to write "fatigue" than something else but I think of the term as a fiction partly created to serve those running eg "fatigue" clinics and CBT/GET.

I have to admit that when I saw this article today I thought of the GPs who have straight up told me that ME is not a real illness, and of the one older GP who simply laughed at me. It is surreal to see this news; I wonder if those affected knew this could happen to them. Misinformation has...

I am wondering if some kind of effort can be made to reach out to ask her to help with funding FM & related illnesses if she isn't doing so already. Chronic illness is part of her image and features fairly prominently in her materials. I think it's positive that she wants to find out the...

As stated above, I am a (former) long-time patient of Myhill's. If anyone involved with her is reading this, they might want to consider whether trying to claim that people should take vitamin supplements instead of covid vaccines helps the ME/CFS patients so desperately in need of recognition...

Truly dire. Why is the situation so bad in France?

Is this going to be improved in the final version? I don't really understand the implications here; seems very bad.

I could not agree more, and I hope this is done as soon as possible. It does not seem that difficult compared to the other research and funding challenges. Something on this IDO2 mutation would be really interesting and as you say would spur interest from others. This approach seems to silo the...

"Diagnosis of exclusion" again? :(

I find this idea of not publishing your research - especially if you say you have significant-sounding findings - to be impractical and unscientific. It is self-sabotage, really. I am sure it's just a question of time priorities, but OMF needs to reconsider its strategy both in terms of the...

He's really calling in all the political favours he can these days.

I do continue to think that NICE are extremely unlikely to change the main points of their draft guideline, as they would call into question their own process. I do believe that various parties do know this and are instead interested in buying time (or perhaps concessions around the margins...

Unfortunately Dr Myhill has gotten into increasingly sketchy territory with the things she recommends. In around 2009 (I believe), she did really help me - part of the reason was that she prescribed "normal" things to help me with sleep issues and so on, and was not talking about some of the...

I agree that this is a bad statement. Re: exercise "therapies", seems to give cover to BPS people who wish to operate around the new guidelines, whatever they will be. Not sure what else is being achieved.

"Outcome measures", "rehabilitation", "multidisciplinary"... *shudder*

I remember the broken car stuff from 13 years and years ago in a dubious ME/CFS leaflet that just kept repeating silly metaphors and problematic biopsychosocial venn diagrams for pages and pages. Probably the same repurposed material they are using for Long Covid.

Sometimes I think about how strange it must be for GM to have had a virus, failed to recover in a timely way, and then come across this entire BPS s-show. And then now to be in a back-and-forth of the kind we are seeing here. Being blamed for spreading LC. It must be surreal for him...

Thank-you for your great work. Is it the wrong reaction to be really concerned that this has to be crowd-funded, though? Can't universities prioritize this kind of work and fund it directly? I don't know much about how funding works but this seems so precarious in terms of the things that have...